Mastectomy post operative care advice

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Hi All,

I am 48, diagnosed with TNBC in March. My mastectomy is coming up on the 11th of November. I won't be having a reconstruction as I have to have more chemo and radiotherapy once I have healed.

I was wondering if anyone could give me some advice on what to expect after the operation.

What clothes to wear , do baggy tops help? , do mastectomy tops work?

How to deal with drains whilst dressing.

Does having a shower proof mastectomy cover help?

Does sleeping on a wedge cushion work ( I have bought a triangular wedge pillow for post operation as the nurse at the hospital advised not to use pillows).

Anything you can advise that will help with my post op recovery would be appreciated 

Thanks 

Caroline 

  • I had a double mastectomy and full node clearance. You don't need anything fancy. A couple of cloth bag on a shoulder strap to put the drains in. I made mine out of some scrap material and a twisted wool cord. I didn't shower till the dressings came off.Strip washed only. I've had surgery on my feet before so I'm use to that. OH washed my back. I'd had chemo so I was bald, otherwise he would have washed my hair. Washing my head was a good way to get my arms moving. 

    Make sure you have button up pyjamas rather than overhead. Pyjamas not nighties.

    I can't help with bras. You've no idea how much of a silver lining that is. I wore big vests under tops to stop any rubbing. Old soft ones, big so you can tuck your arms into them to take them off or drop them off my shoulders to be examined after. Now I wear silky ones under more sheer tops or thermal  vests to keep warm. No prosthetics as I'm flat and it's so comfy..

    I did buy a wedge and a curved cushion set from our friends with the big smile. I used a single thin pillow for comfort. That was a good buy. I still use the wedge in bed for watching tv or reading or writing e mails. I'm afraid I'm on two pillows to sleep as I'm still not completely comfortable to sleep on my side. I

    It's hard at first but I had full movement back in about a month but you must do the exercises a few times a day. I'm actually worse now than I was back then but that's another story.

    Get plenty of rest, eat well and drink lots.

    Three times! What did I do?

  • Hi Silver berg

    Thanks for the advice, certainly lots of good advice I will certainly be taking  note of it.

    Thanks 

    Caroline