Suffering with specific side effect

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This is my first time posting. I hope I'm in the right place and apologise if this is long. I'm wondering if anyone else has experienced anything similar as my mum is really suffering and feeling very alone and unfortunately not really being taken seriously by her drs. When she first underwent chemo she experienced neuropathy in her fingers. However, she is now experiencing something similar over her whole body. Like a skin scrawling sensation, occasionally painful, coupled with extreme heat, all the time (although her temperature remains normal). It seems to have coincided with starting herceptin injections. The drs are either perplexed or not particularly concerned, but it's becoming quite debilitating and limiting. Has anyone been through the same? Thanks so much for reading x

  • Hello,

    I have similar symptoms but only on the hands, legs and feet. The skin sensations are referred to as ' ants' by my neurologist. Does that sound similar? 

    If your mother hasn't seen a neurologist I recommend you insist she does asap. My neuropathy is permanent caused by the chemo. I take vitamins and gabapentine to control it plus regular check ups and nerve tests.

    I hope your mother gets help soon but tell her she is not on her own and most reputable neurologists will recognise her symptoms. Mine actually told me what I was feeling. It was very reassuring to be taken seriously by someone about something that is so difficult to describe.

    Take care. Karen

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