I underwent a lumpectomy on 4th August with a sentinel node biopsy. They managed to get the cancer removed with a clear margin but it had turned up in one lymph node. I’ve waited since then for the results of my Oncotype test and I scored a 7. I feel relieved. I will not be having chemotherapy but will need radiotherapy as expected. My question to the group is that there are long wait times for radiotherapy in my nearest hospitals with a wait time of possibly 3 months. I have been told that the shortest wait may be 6 weeks at a private hospital that the NHS will pay for as they will source the treatment out. I will need 15 rounds of treatment over 3 weeks. The private hospital is over an hour and a half away in London (I’m on the South Coast). Can I try and find a private hospital closer to home and demand that the NHS pays if the wait time is much shorter. Also is 3 months a worry or should I just wait and then go locally?
It might be worth asking if you’d get help with travelling as to do a long journey day after day is tiring. My rads were in Oxford which was around a 2 hour drive whichever route one took. My GP wouldn’t hear of me driving myself and just gave me the number to phone for transport.
as to choice, sadly I had none as there used to be a contract with a nearby private unit but it ended a few years back. I hope you can get some advice as to which way to turn? BCN? A member of your Onco team?
Hugs xxx
ps, I had the same, it was only in one node on surgery for my recurrence, surgeon thought I was clear….
Moomy
Moomy, thank you so much for replying. Mine would be at least a 3 hour round trip if I had to go to Wimbledon. I will definitely ask about help with transport. I’m really hoping they will let me go to the private hospital that I’ve found which is under an hour away. Have you been cancer free for a while? Xx
I’m supposedly free for a couple of years now, surgery was May 2024….radiotherapy was that July. Then had a newish drug, Abemaciclib for 2 years plus the hormone ones again for 5. Originally had just surgery with an implant and oestrogen busting meds for 5 years, that surgery was early 2018 but it sneaked behind the implant and I only found it due to an extra ache and a tiny firm lump at the end of my scar. I’d even had a year clear of drugs too! So now flat that side and not keen. Ah well….at least I’m alive!
I think they like a gap between surgery and rads so you get full shoulder movement and are fully healed. You’ll need that shoulder movement as of course you have arms up for the rads.
Hugs xxx
Moomy
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