Neratinib

Hi Jt23 

I am one of the breast cancer community champions, but unfortunately don’t have the experience you are looking for. By responding, I will have bumped your post up to the top of the page in the hope that someone with relevant experience sees it and responds. 

Hi Jt23

I am about to finish a year of Neratinib and like you just read negative comments. I have not really had many issues whatsoever. I am not going to lie the first month was quite hard going with tiredness, nausea and some diahorrea(they do start you off with a high does of loperamide as well as nausea drugs) but then my body seemed to adjust and I was fine, i did adjust my diet and i think that is what most people say, nothing drastic but you have to go easy on spicy foods, fruit, juices, anything too acidic etc...the obvious things really! For the first month I ate lots of plain/beige food! I hadn't gone back to work when i started it and was glad to have a bit of time not working to get use to it, I went back about 2 months after starting! But it really has been very manageable. Xx