I want to know why there seems to be such a lack of trust and lack of communication between hospitals, doctors and me.
Over the past year I've had my bloods done so often I've lost count. I've also had my blood pressure taken. Yet the doctors still insist I go down and have them done for my yearly check. I pointed out the number of times I'd been done but apparently the Doctor can't access the hospital records. Really!! Why not? I can access my blood results on my NHS app surely my Doctor should have the same information. I got the doctors ones done yesterday at the hospital. They were done at the same time as my immunology bloods. One less chance of introducing infection.
On a second moan. I am going on holiday shortly. Naturally I need to take meds. I counted up and worked out there of them wouldn't last. I trotted, well limped to down to doctors to fill in the slip of paper and I'm my anastrozole haze I made a mistake on my zols. I asked to anastrozol instead of Lansoprazol. Two of the items were completed on Saturday that wasnt. I had to ring and was told I didn't need anastrozol. I went back and recounted, realized my error. What if I hadn't been so pro active, what if I'd left it late to sort If have been setting off without the meds I need. This is not the first time this type of thing has happened. I know my meds are my responsibility but surely my Doctor shares that responsibility. As I said earlier I have the NHS app. A message saying why they hadn't prescribed the anastrozol would have prompted me to check. Surely that is what it's for? I
Speaking to friends in the same situation this lack of communication is a common problem. All of which cost time which is easily translated into money.
Rant over. I feel better. Have a good day.
The GP and hospital IT systems aren’t joined up and there isn’t a single patient record. Some hospitals’ data (mine included) doesn’t update the NHS app as it depends on which IT system the hospital uses. The only thing I see in the NHS app from the hospital is the copy of the electronic letter my oncologist sends my GP after every appointment. Treatment complications have put me on levothyroxine, blood pressure tablets and statins. They have also made me pre-diabetic. Because I am metastatic I have regular oncology appointments and need a blood test before each of them. Because the GP surgery is managing my medications they also want the same tests but need ones that are automatically uploaded to their systems. They can download the hospital’s data but that requires a non routine action. Irritating but not easy to fix without IT investment. There have been several failed projects over the last 20 years to attempt to resolve this plus there are significant objections from those who worry about who is accessing our data, whether it is being processed outside the UK etc. I used to work in IT, these problems become intractable.
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I have metastatic Triple Negative Breast Cancer, in remission
