Hi, stage 4 cancer here.
I can't find anything online about this medication, that is why I am asking here.
My oncologist said that my next line will be capivasertib and faslodex.
Those few sparse posts I have found online describing this treatment "worse than chemo".
Capivasertib is a new medication approved in UK less than year ago. Is there anyone who can tell me how reality looks like, not just a list of side effects from manufacturer portfolio? Real world experience?
Will I be able to work? Will I be able to take care of myself?
I live alone, have no friends or family, so it is not question of hyper-independence but my reality.
How those injections looks like, how everyday life on them looks like?
From what I was able to find online: capivasertib - for 4 days out of 7 you are just able to lay down, maybe go to toilet and that is it, 3 days you are getting a little bit better, but then - next cycle starts. With Faslodex it is - for 2 weeks out of 4 you have extreme pain and fatigue, hot flushes AKA hell's furnace, 2 weeks of slowly getting better, but then - next cycle starts.
I do understand that cancer is not a walk in the park but this feels a little bit of overkill.
I did contacted Macmillan helpline but answer I got was - "we have section on our website about faslodex". I did have a look but it is the same like a leaflet from a box.
thank you,
I would appreciate it if you could help me.
K
