Anyone give up Phesgo early?

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Hi i have just completed cycle 15 of Phesgo. I’m due to have three more. However I’m not sure I can cope emotionally or physically with anymore. It’s been a rough ride. I have peripheral neuropathy, permanent itching, insomnia and breathlessness, nausea, fatigue . Initially I would get an allergic reaction after each dose which was very scary. I was prescribed an EpiPen in case it happened once I’d left hospital but fortunately it never did. This time I felt very weak and a few days after the dose whilst feeling sick I collapsed with very low blood pressure. I’m seeing my oncologist next week but just wondered if anyone here made the decision to stop before dose 18? 

  • Hi, I just noticed your post hasn't had any replies yet so I thought I’d just acknowledge it and by doing so it will pop it back to the top of the group so I hope someone with the right experience will be along soon.   Personally I was lucky and had no side effects from Phesgo, so sorry to hear you are having such a tough time. I hope you get some good advice from your oncologist when you see the,

     best wishes 

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