Family history of breast cancer : grandmother (deceased), mother, sister, cousin (deceased).
I was informed yesterday during a genetics meeting that I have tested positive for the BRCA 2 gene. I was due to start radiotherapy following a lumpectomy and sentinel node biopsy. They said I could be monitored via mammograms in the future, but my lobular cancer was missed on my mammogram before I found the lump during self examination. Therefore I will be having a double mastectomy and reconstruction and my ovaries removed. It's a lot to take in!
Anyone had anything similar?
Jo xx
Hi Jojo73
I am sorry you have a BRCA2 gene defect. The surgery is indeed a lot to take in, but it does mean you are in control and can hopefully have a normal life once you are through it.
We have a BRCA positive forum you might like to join to find others in a similar situation.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
I am BRACA 2 positive and can appreciate where you are. I had my ovaries removed and then found I had BC. I had a double mastectomy with breast reconstruction. I had implants. This was 4 years ago.
I can only advise you work with your medical team and it will work out.
All the very best
The process is overwhelming. My breast surgeon said that I had a tendance to over think everything. In the end I tried to take it one step at a time.
Breast Cancer Now were another support line I used.
The BRACA part was a more difficult part and I realised that support in this area is a post code lottery. In Kent they have BRACA Kent but nothing where I live.
Having the BRACA gene brings additional questions. Again the knowledge should be where you had your genetic screening.
Keep a list of your questions and slowly you will navigate your own path
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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