Hi,
I most likely have posted this some time before. I was diagnosed with IBC stage 3 that had spread to my lymph nodes, I had chemo but refused a maectomy (advise to have non-skin sparing), I have been on phesgo a year and I am still alive and so far no sign of any tumour anymore and no sign of cancer anymore, no active cancer cells were found in the tumour that was there post chemo from a biopsy.
I am wondering if anyone else refused a masectomy that is Her 2 positive with IBC and if so are you on phesgo or what is your treatment? I am also wondering if any one else is on phesgo and how are you finding it?
I am still having real heavy discomfort in my chest and under my rib area despite the test results, is this normal?
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007