Hi ladies, I’m looking for some hope and solidarity I guess! After completing 14 rounds of Kadcyla in July 2025 for stage 2 triple positive, I’m now in that stage where I’m trying to get my life back. I’m 42 on Tamoxifen, Prostap and 6 monthly zoledronic acid infusions. I had 6 Docetaxel and phesgo, full mastectomy and node clearance plus rads. It was a gruelling 16-17 months of aggressive layered treatments.
I’ve been on a really slow return to work from Nov, scaled up to 3.5 full days - I work in sales so fast paced and full on so I’ve tried to take it really slowly. I also have a 3 year old and have been working on strength building at the gym with a PT as well as getting back to my netball. The exercise is the only thing that helps lift my low mood-low energy!
I’ve tried to be mindful but I’ve definitely been tired a lot, especially as work has ramped up in its intensity. I had my last zoledronic in mid March and I’ve been really exhausted since then. I had a full blown fatigue crash on Good Friday. I couldn’t get out of bed I was so fatigued, I felt nausea, my stomach was off, brain fog, head aches the full works. It wiped out the whole weekend I was in bed for most of it.
Since then I feel like I did whilst I was in active treatment. Totally wiped out, I’ve had to scale right back on work, doing an hour or two and then resting. I don’t have the strength to exercise, just little walks etc
After doing so well and living much more normally, I’m pretty crushed. It feels like a huge huge step back when I was so focused on building myself back up. I’m not the most patient and I’m now feeling really low and stressed that this could go on and on. I was really focusing on the light at the end of the tunnel and feel like I’m back at square one.
Keen to hear if anyone else has experienced a similar back step, how long it lasted and how you coped?
