Hi, I’m 77 and been taking Letrozole for 3 years, my only treatment ( my choice) for stage 3 breast cancer. I’m doing brilliantly ( 3 monthly checks and tumours now hard to find when scanned ) but at night I get serious leg pain. I walk at least 5 miles a day, no alcohol, plenty of liquid and blood pressure fine. I have started taking magnesium glycinate and it already seems to make a difference. Pain seems to be to worse if I do “too much” ie gardening and carry pots of soil, decorating etc. Anyone else experiencing leg pain and any ideas of what else I could try ( apart from slowing down).
Hi, I find I get pain in my right thigh when I am standing around too much, but if I keep to a moderate level of exercise it seems ok. Sorry not to help with ideas, but I wanted to share that you're not alone. Best wishes
Hi I also take letrozole and since taking it have experienced hip and leg pain. I walk similar around 5 miles a day where I can but my hips are usually killing me and then I get bad cramp in my legs and terrible shin splint pain which is worse at night. Unfortunately I have yet to find anything that helps so if anyone has any tips I would welcome them
I too get foot and ankle cramps and pain too, but am on Exemestane, had 3 years on Letrozole and two on Tamoxifen when the pain and cramps all built up, a year off when I noticed a slight improvement but then had a recurrence and back on the old inhibitors…. If I walk regularly and keep fluid balance correct it does help, I also take a small dose of quinine which has helped a bit (prescribed by GP)
hugs xxx
Moomy
I'm already taking glucosamine, turmeric and cod liver oil. Daughter suggested collagen so that arrives tomorrow.
I'm 6 months into anastrozol. Had tamoxifen before with the same painful side effects.
My worst pain is trying to get out of bed for the toilet at about 2.30 when every joint is frozen solid.
I keep exercising but it's so hard.
Big hugs to everyone on this awful treadmill.
Three times! What did I do?
I find it the same . The leg and shin pain in the night is often awful but it has helped me to take magnesium glutaminate when I go to bed and I use a hardish pillow stuffed under my knees. It’s been the same for the 3 years I’ve taken it but as my scans are clear I have decided it’s better to deal with that than the surgery that was offered or to experiment with other drugs.
if the pain or cramps feel too much I get up and make tea, play with my cat and then try again to sleep having moved around a lot. But it’s a tough challenge.
I too am interested if anyone else has suggestions that might help.
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