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Genetic mutation on tumour

SarahSW
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Hi

I have taken part in a programme to analyse the genetic make up of my tumour, its revealed an FGFR1 mutation. Having Googled this I am now terrified I am destined to relapse after I get through this primary diagnosis as it is ‘strongly linked’ to endocrine resistance, poor prognosis and survival. 

i’m Er+ PR+ HER2-. I’ve got young children and I’m terrified. Can anyone help?

  • One thing we all do and should not is Google . We never read any good news . 
    The best thing you have done though is have this genetic blood test , so now you and your consultants are fully aware of how to treat you, and what to watch out for , it may mean you have chemo instead of Hormone meds , or other meds that are more suitable. 
    easy to say don’t worry , but speak  to your BCN they’re there to help xx

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