New diagnosis 30 years old

Hello Daisy.

You are not alone, you have a Mum and a partner and a Support network around you.

The first thing to do is STOP googling. Nothing good comes of it unless you are going out for a meal. The waiting  bits are the hardest because your mind never really stops and the what ifs are endless. Maybe it could have been found sooner but it has been found now and that is what matters.

There is endless support on here and through Macmillan so use it. The NHS are remarkably good at this too. The care I've had every time has been amazing. It is a difficult time but you will cope.. 

You are never alone. Huge hugs.

Waiting for diagnosis is the worst of times and it’s very normal to think every strange new sensation is a sign of spread. The brain plays awful tricks on us. I once read a comment on here that said if you think you have a new symptom, write it down. If, in 2 weeks time you still have the same symptom then get it checked out. Many just go away because they were just tricks of the mind.

There’s nothing to say at this stage that your cancer has spread. Even if it has, many of us live good lives with modern treatments. I have been living with metastatic TNBC since 2022. Other than being rather too addicted to this site, I mostly don’t think about it. 

Wishing you all the best. 

This really is the worst part waiting for the details of your diagnosis. I’m having chemo at the moment for stage 3 triple positive bc, I’m 39. Whilst I was waiting for the results of my full body cat scan I was convinced I had cancer all over my body. Every part of me ached and I was sure they were going to tell me I was stage 4. Other than in my lymph node there was no evidence of any spread. I think the trauma of diagnosis can put the body & mind under so much stress that all sorts of aches and pains manifest. Plus we become hyper sensitive to every feeling in our bodies. What symptoms have you been having? Before being diagnosed I had a few night sweats and was very fatigued. 

Thank you, I found your reply very reassuring. I totally agree with what you’ve said and since my diagnosis I have also been aching all over my body and having weird shooting pains. I’m sure this is psychosomatic though. The main thing that concerns me is back/neck pain that I’ve been having for almost two weeks now, it started a little before I was diagnosed and doesn’t seem to be easing at all. I’ve never felt a pain like it and it feels different to muscular pain. 
I think the fact that I’ve had this lump and known about it for so long has also elevated my anxiety about the cancer having spread. Up until this point I haven’t really had any other symptoms at all though. 

Today, I assume my PET results may have come back, on MyChart I had a random referral for a thyroid ultrasound (?) which isn’t doing much to settle my mind. 
It’s such a rollercoaster of emotions, I find out results of everything on Wednesday 

All sorts of incidental findings can crop up on CT scans, hopefully it’s something not cancer related that has prompted the thyroid scan. How annoying to spot that on there with no explanation from dr why you are having it, that would drive me crazy! 

I really feel for you I remember the absolute feeling of horror waiting for those initial scans to come back. I couldn’t eat, sleep… it’s just awful.
I just had a mid chemo MRI result… so I felt all those fears all over again. But… the 3cm tumour was no where to be seen on the scan… chemo it seems has already completely wiped it out! 

i never checked my breasts so who knows how long mine was there, mine is grade 2 so probably was there a while. When I was diagnosed I hated myself for not checking sooner & only found it when it was 3cm! 
The main thing is you are on the right track now, once you get the results everything will start to happen quickly.

All the best to you for Wednesday…fingers, toes … everything crossed for you that you get as good a result as possible xxx 

Hi. Gosh you are so young, I’m sorry you are going through this  I was 40 at diagnosis and thought that was very young. 

Can I ask, you say it’s grade 3 so presume you have had the biopsy results so what type is it? I know HER2 negative is a very slow growing cancer which can take a very long time to travel to other body parts. They would have told you your KI67 details and that is how fast growing it is.

 Are you just awaiting the results of the full body scans now to see if it has spread? 

As others have said, don’t google you get lots of contradicting advice. I read grade 3 is bad but my consultant said don’t read that, grading is for their internal purposes only. 

I won’t say don’t worry because we all do. But all these other aches and pains are not indicative of spread. Her 2 negative spreads to bones and liver. You’d have lower back pain not aches. Her 2 positive tends to spread to brain. You would have constant severe headaches. Not sure where triple neg spreads to. 

Also I know someone who was diagnosed at stage 4 originated from breast they said but her breast had no traces of active cancer so you finding a lump in your breast may be a sign it hasn’t left there yet. 

Be positive you will be fine, there are so many treatments these days.