Need to share

Oh sweetheart, it's so shit when this happens. How on earth can you be letting anyone down, you didn't make this happen, it is happening to you. Same as it happened to me. I was shocked when they found it in my lymph nodes, and that is when I did fall apart because I know my journey was going to be longer than I thought. Even my oncologist swore with me hahaha. Please allow yourself to feel what you need to feel. The one thing I promised myself was, I wasn't going to brush my feelings under the carpet with this situation like I have with other traumas in my life. I'm not going to pretend I'm ok for other people, not this time. And I'm doing ok. It's ok not to be positive it will come back around. I band everyone from saying " AT LEAST" it drove me crazy hahaha. Sending hugs. Always here for a rant. Xxxxxxx

Thank you so much for your reply, it helps knowing youre not alone. I hate it when people say 'you're strong, you've got this', when some days you don't want to have this or be strong. You just want to curl up with a hot water bottle, a duvet, some cheese and wine and say 'this is shit'. Xxx

Just a little bit of advice, IF you do have to have chemo ask IF you might need bone strength infusion. They will need you to have a dentist check up before they can start. Well my dentist has a 8 week waiting time and it was just pot look that I had booked a check up in time. But I was only told they needed me to have a check up the week before I started chemo. It could have been a real issue. 

Good luck. 

No matter what your going through a duvet day is essential .

That's interesting to know about a dental check. My dental surgery closed down so might need to get a private check. Thanks for the heads up. Xxx

You are not alone in this I was diagnosed with DCIS . After surgery they found small areas of invasive and so had to go back in and do sentinel biopsy .. they found a macro of 6mm lobular  in one out of two lymph nodes … I was distraught as was not coping well in the first place … but lymph node involvement is common apparently  . I was steered towards radiotherapy rather than surgery to clear the lymph’s . I’ve just finished the radiotherapy … And now I await ribociclib to prevent recurrence and bone infusions to strengthen bones because I am on hormone blockers … everyone’s treatment and scenarios are so different yet there are similarities too .. we kind of adjust but it’s not nice getting used to one situation and the goalpost changes … I hope once your plan is in place you begin to feel better .. and we have to put ourselves first where we can xx 

Hi

I’m sorry you’ve had this set back. It will take you time to come round to your new situation and be ready for the treatment - be kind to yourself - it is horrible and really you dont know what it’s like unless you’ve been through it (I sometimes think this about one of my oncologists who can be a bit austere)

I’m on the bone infusion - Zoledronic Acid - and you do need to be signed off by a dentist before you start it. However if you do need it, tell the dentist why you need the check up and that there’s time pressure because you need to start treatment and I’d imagine they’d try to find a way to treat you.

I had a complete laundry list of things to get done before I started my chemo and i found people really went out of their way to accommodate me

Good luck - it’s not an easy journey but there are lots of us here to keep you company x