Ribociclib- side effects

Hi Lindsey what does ribociclib will you be taking?

Lee x

Should say dose

I'm not sure. Its for prevention of recurrence rather than trying to deal with advanced cancer but not been told yet what the dose is. 

I am on Letrozole and Ribociclib (400mg)   I haven't been too bad with side effects.  My main issue with the Ribociclib has been constipation which is apparently less common than diarrhea.  Sorted this out with a daily tablespoon of golden linseed on my cereal.

Some aches and pains, feel like I have aged in the last few months, definitely can't walk as fast but can still manage a decent few km just slower.

Some mornings I just feel a bit offish, and I always welcome the week break as my energy then returns.

Been on the medication for 6 months now, had some terrible hip pain in the 2nd or 3rd cycle but it only lasted about a week and then settled down.

Feels like it's worth it as I am high risk of reoccurrence. 

Good Luck and enjoy your holiday,  2 months should give you a fairly good idea of what to expect and if you can time your start date so you get your 7 day break while you're away you have that as a bonus.

Hi Lindsey I would think it would be 100mg or so.  I have been on 600mg for secondary cancer.  The main side effect I had was a terrible rash.  I was fine for the first three months and then it started.  I have now been on 400mg and am fine with it.  So I would say have a fabulous holiday and enjoy every moment.

Lee x

Likely to be 400mg for prevention, taken for 3 weeks and then a 7 day break.

Hi Harvestmoon I didn't realise the dose was that for prevention.  Good to know thank you.

Lee x

Thank you. My holiday is for 3 weeks to Asia and is a once in a lifetime trip that I had to cancel last year due to radiotherapy so the thought of side effects or even hospitalisation whilst on this trip worries me. My understanding is that for my cancer it has a relatively low risk of recurrence (10%?) and I would only get a 2-3% improvement on that with the ribociclib. I'm wondering the benefit really outweighs the risks and quality of life. 

Only a decision you and your family can make really.  

Try discussing it with your oncologist, there maybe options if they know the reasons. 

Good luck whatever you decide  x