Zoldronic Acid

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Hi. I have an appointment for the 19th Dec to start my first Zoldronic acids infusion. Think like most of you this will be every 6 months for 3 years. 

I currently take letrozole once a day with a once a day vitamin d and calcium supplement. A letter came through yesterday telling me about the infusion and it said calcium levels must remain high and I just take the vit d and calcium supplement twice a day after first infusion. 

Has anyone else had this recommendation too? 

  • I get prescribed with calcichew d3 for a month after the 6- monthly Zolendronic acid infusion. I’m on Abemaciclib and Exemestane as well. But I’ve read that vitamin k and magnesium are also helpful to ensure the best result so take a multi-vitamin/mineral supplement at the same time. Due to the Abemaciclib I have regular blood tests and levels have always been good. 

    hugs xxx

    Moomy

  • Thanks Moomy that’s good to know. 

  • I told my surgeon about the added vitamins etc that I take and she was fine about it. 

    Hugs xxx

    Moomy

  • Hi, I wasn't told to double the dose, but if you're unsure, give the lovely people here at Macmillan a call on 0800 808 0000 for some advice.

    And just a heads up. My first zoledronic acid…..I felt I'd been hit by a bus! Like the flu but worse, it knocked me for six for about 24 hours.   Weirdly, very one since I've been fine. Best wishes 

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  • Thank you I might do that. 

    Oh really I have heard of people suffering with bad flu like symptoms. I hope I don’t suffer for too long as my appointment is not long before Xmas See no evil

  • Don't forget to drink plenty of water to stay hydrated before and after your infusion.
    Have you been given a form for your dentist to fill in saying that your teeth are in good order?

    sx

  • Thank you for the tip. Yes I’ve had my dentist form signed. 

  • I’ve felt absolutely fine after my infusions….had 4 now I think. 

    I was asked about dentist (I’m in Denplan anyway) and oddly I’d had a check up  just the previous day and all was fine.Dentist just said ‘oh, ok’ when I told her.

    hugs xxx

    Moomy

  • I’m due my 6th infusion in January. I’ve felt a bit achey and fluish each time, but fine in 36 hours. 
    Lots of people feel it for the 1st one, but then nothing for the others…

    All the best  xx