Mammogram didn't show the cancer

  • 3 replies
  • 270 subscribers
  • 276 views

Hi,  I had surgery and radiotherapy at the start of this year.  I am taking Letrozole and will have mammogram for 5 years as a follow up.  I am concerned because when I felt the lump in my breast the mammogram didn't find it.  Because I told the nurse I had a lump I had an ultrasound scan which did find it.  How can I trust follow up mammogram?  Can I ask for an ultrasound each time? 

  • I know how you feel. I had an all clear last October it was my fifth yearly mammogram after BC was found on a mammogram . In June I found a pretty big lum identified as BC from a mammogram . I went to for numerous scans and they found a cancer in the lymph gland left over from the last time. This wasn’t picked up by surgeon or mammograms because it’s up high almost under my collarbone.  I will be having a bilateral mastectomy after chemo this time. However if I hadn’t found this lump because of my age I wouldn’t have had any more mammograms anyway. Dread to think how far it could have spread from that lymph node. 
    I know it’s reliable but maybe they need to put in some research into doing alternative testing. 

    You are entitled to a second opinion so maybe that’s what you can apply in this case. 
    Good luck with your quest. 

    Three times! What did I do?

  • I'm really sorry to hear what you are going through.  At least they have found it now and are dealing with it.  I had a lumpectomy with a Licap flap partial reconstruction so my breast feels a liitle lumpy anyway and I could easily miss a worrying lump.  I think I will ring my BC nurse and ask her if I can have an ultrasound after my mammogram to stop me worrying. I hope your op goes well and you can move on. 

  • Hello. I had 4 mammograms, and NONE showed the 10cm tumor i had (which you could see with your eyes!) Also didnt show the 2 smaller tumors the other side picked up by MRI.

    I got told it is my age (41) and thickened breast tissue. I get it, but the tumor could literally be seen and grabbed, it was close under the skin and huge?! 

    Im in active treatment at the moment (weekly chemo) and my oncologist said id be given a mammogram at the end to see how things are... I respectfully but VERY firmly said no thankyou, the scan I will be insisting on is an MRI as it has been the only reliable one so far.

    I work for the NHS, although in a different sector. I love the NHS. It needs protecting at all costs. However, don't let being thankful stop you from speaking up. There are processes (and people) which need to change, and the people we WANT caring for us are those who encourage that, and want to know when things go wrong.

    Just because the mammogram is the usual process - if you don't feel it suits your body which then puts you at risk - shout about it.