Who do I contact for advice on treatment if I have an autoimmune and breast cancer?
My oncologist doesn't have a clue what he's doing. My rheumatologist says he's not an oncologist.
Problem:
Systemic medication contradicts autoimmune. They've put me on another systemic medication of the same type. Im worried this medication will have the same effect (bad autoimmune reaction)
What's next?
I saw Oncologist yesterday, no answers. He's waiting to hear from my rheumatologist (rheumatologist has already said he's not an oncologist and won't give advice).
I had second opinion, they had no idea and just said try offered medication.
How do I find an oncologist with experience in autoimmune?? Otherwise Im waiting months to start essential treatment. Im happy to pay for a private consultation but who do I pay? How do I find the appropriate Dr?
Any help appreciated.
Hi there, sounds really frustrating to have different doctors not aligned. Might be worth calling the team at Macmillan and asking for their advice. You can reach them on 0800 808 0000 from 8am to 8pm daily. Best wishes
Thanks. I have called but unfortunately haven't had much help. Many thanks
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007