Fear of reoccurrence

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I am really struggling with reoccurrence, I am on Letrozole and Zoledex every month and I have lots of aches and pains and severe fatigue. I have had a pain in my shoulder for some time and the Dr thinks it's muscular but I went to see the Oncologist and he suggested a body scan because I'm worried but now I'm really frightened of what they may find.

I'm petrified that after the scan I'm going to be told it's in my bones etc I can't get it out of my head.

I am working full time which I am struggling with but have no choice, I am wondering how others may cope with the fear of reoccurrence? I finished my Chemo in December and Radiotherapy in February. I am finding it harder to cope now than when I was having treatment which I know is common.

I suffer with survivor guilt and think what am I moaning about I'm still here !! But it's so difficult.

  • Yes it is hard, isn’t it  ? But I think you need to trust in your treatment, it’s been tailored for you and they are keeping a careful eye on you. The treatment effects of radiotherapy actually continue for some time after you’ve finished, late effects aren’t even considered for any help till a year following the end date of treatment. 

    I think you also need to rediscover faith in your body while keeping a careful eye on what’s going on (but try to keep that sort of ‘in the background’ if that makes sense?) 

    Letrozole is a real so and so for causing skeletal aches and pains, I’ve got its results too, and am now on a different aromatase inhibitor (Exemestane), actually following a recurrence. 

    Hugs xxx

    Moomy

  • Hi, 4 years since diagnosis and I was struggling with hip pain. The oncologist also referred me for a full body MRI and she explained that it was as much for her reassurance as mine.   The MRI itself wasn't a pleasant experience, but everything was clear and it gave me a lot of reassurance.  Best wishes 

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  • Hi I'm so pleased for you, thank you x