Feeling disregarded and a little apprehensive.

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I have Breast cancer which has metastasised into my bones and liver. I was told 3 1/2 years ago that the prognosis was a life span of 3 - 5 years. Since then I have been on medication to stop  production of estrogen and another tablet to stabilise the cancer from spreading further.  Not curable but has been stable for 3 1/2 years. 
The consultant has taken me off the above tablets for a month and then introduced a lower dosage to help with the fatigue, lengthened the periods between scans and changed the appointments to telephone appointments. 
i have to say these changes have really rattled my emotional state of mind. I feel as though I have now been disregarded because I have been stable. Surely, with the changes it would be pertinent to just make sure things continued on a stable path. 
I have tried to speak to my husband but he just doesn’t get v it. In fact he suggested I was ‘needy’ which hurt like  hell! 
I know that I should have faith in the consultants but rationally or irrationally I feel like I no longer matter,  cause I am not getting worse. I know there are people who are in a much worse place than me, I suppose I just want to feel like they are still interested. 

  • I also have stage 4 cancer. In my case tnbc metamastised into my liver. I can’t be treated with aromatase or CDK inhibitors so am not on any treatment. I have never asked for a prognosis. Fortunately I am stable following immunotherapy and ablation. I have also been recently ‘promoted’ from 3 monthly to 6 monthly scans. I mostly have appointments by telephone at my preference. I don’t regard any of this as oncology indifference, rather I see it as increased confidence in my stability as the period of time lengthens. I also appreciate having fewer periods of ‘scanxiety’ waiting for results. If you are able to reframe what is happening in a similar way it may help you.