I have Breast cancer which has metastasised into my bones and liver. I was told 3 1/2 years ago that the prognosis was a life span of 3 - 5 years. Since then I have been on medication to stop production of estrogen and another tablet to stabilise the cancer from spreading further. Not curable but has been stable for 3 1/2 years.
The consultant has taken me off the above tablets for a month and then introduced a lower dosage to help with the fatigue, lengthened the periods between scans and changed the appointments to telephone appointments.
i have to say these changes have really rattled my emotional state of mind. I feel as though I have now been disregarded because I have been stable. Surely, with the changes it would be pertinent to just make sure things continued on a stable path.
I have tried to speak to my husband but he just doesn’t get v it. In fact he suggested I was ‘needy’ which hurt like hell!
I know that I should have faith in the consultants but rationally or irrationally I feel like I no longer matter, cause I am not getting worse. I know there are people who are in a much worse place than me, I suppose I just want to feel like they are still interested.
I also have stage 4 cancer. In my case tnbc metamastised into my liver. I can’t be treated with aromatase or CDK inhibitors so am not on any treatment. I have never asked for a prognosis. Fortunately I am stable following immunotherapy and ablation. I have also been recently ‘promoted’ from 3 monthly to 6 monthly scans. I mostly have appointments by telephone at my preference. I don’t regard any of this as oncology indifference, rather I see it as increased confidence in my stability as the period of time lengthens. I also appreciate having fewer periods of ‘scanxiety’ waiting for results. If you are able to reframe what is happening in a similar way it may help you.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007