Hi all
i have recently just finished NAC for triple negative breast cancer and am due to have surgery next week. They ran some bloods for the pre op and I was suprised to find out that my vitamin B12 levels are very high. I’ve done the worst thing and googled and read a lot of stuff about elevated B12 and the links to secondary cancer and liver cancer and have scared myself silly. Did this happen to anyone else after chemo and if so did your levels eventually go back to normal?
thank you x
Hi Lis25
My own cancer was endometrial and I had chemo in 2022. I know that post chemo a lot of levels of things in my blood came back as off but gradually settled with time.
During chemo and also throughout my cancer journey I had many blood tests and was told that fluctuations can be normal and that particularly during chemo were expected. Where treatment was needed I was given supplements and retested. Although it is scary when a blood test throws up a concern I would be reassured that your team are regularly monitoring you and that they would do further tests if they felt it an issue.
Googling can be scary but understandable. I know that I did when I first had my diagnosis and scared myself silly. The issue is that the information is not specific to you and your diagnosis and medical history. It can be inaccurate and out of date. I think with me it was tempting to search for an individual concern and it was not the whole picture.
I would recommend discussing with your BCN/consultant but in the meantime you could consider giving the Macmillan Support Line a call and asking one of the nurses about the vitamin B12 levels. They should be able to give you the answers you need.
I wish you well for your surgery next week and hope your recovery goes well. In the meantime if there is anything you need then do please ask.
Jane
