Chat

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Hey, i am A 14 year survivor of breast cancer , here for a chat if anyone needs it :) 

  • I do understand how you feel with regards to not being able to do stuff, you feel kind of helpless. 
    I remember shouting at my then 13 years olds because the kitchen was a mess, my partner had cooked food before work, and I completely lost it. I was exhausted but there was so much to do and no way i could do it. I think as women that are on the go, we struggle with not being able to do what want to do, because our mind is saying go, but our body is saying no., but your body knows best, and as you know, things will get better, and every part of this is temporary. 
    Try and find the positives of each day, as not every day may be good, but there is something good in wvery day , and of course, the  biggest  positive is that you are still here!! 

  • Morning yeah I think because as a mum nanny and partner we take everything on I was working full time looking after my mum who had breast and lung cancer but didn’t have treatment it was all too late , sadly she passed 5 weeks after being diagnosed then looking after dad with dementia , my marriage broke up lost my house all in 5 years .. then my dad passed … then 3 years after all that I had the stroke , got back to normal well my normal then the cancer diagnosis… i feel like I’m going backwards and just want to do the things I was doing befor cancer .. but it’s just not happening and hate that everyone is looking after me that’s not sitting right in my head .. I’m normally the one looking after everyone else and the transition is very hard x

  • Thats alot to deal with for anyone, and it amazing the strength you have found to Deal with each thing. The transition is hard, but sometimes we just cant do things, i really do understand how you feel, as i was the same. I tried to do as much as i could. Even now when im ill i hate not being able to do stuff!! 

  • This is good to read! 
    In Feb 2023 my cancer was small, grade 3 and in 2 sentinel nodes, but not in any that were later cleared. My treatment has been very similar to Sparkle’s and I’ve got 8 months more to do on the 2 year abemaciclib and one Zometa infusion left in January.. Will continue on letrozole for a few more years 

    ive been able to feel positive, taken all treatment offered and come back pretty well from each one, but I’m feeling pretty low and really tired just now and a bit pessimistic about how far I’ll pick up after next May…

    However I’ll start by feeling the relief with the grandchildren heading back to school and enjoying activity without any moans, squabbles etc that you can get from kids at times…

  • Just thought I’d pop back in with this article, which I’ve found really useful over the years. I know people on this thread are all at different stages of their cancer experiences but for me it’s been relevant at many points. 

    Can’t post the link, don’t know why! Anyhoo it’s very findable online - After the treatment finishes by Dr Peter Harvey. 

    Love and hugs, HFxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Yeah definitely it’s the same as me frustrates the life out of me .. today I’ve given myself a mental list of things to do if I do is another thing but gives me something to get my teeth into x

  • Easily found indeed! Thank you. x

  • Hi LondonLass 9 years since secondaries is brilliant and gives me hope.  I had breast cancer 12 years ago and was diagnosed with secondary breast cancer with bone mets in most bones September last year.  I am on Ribociclb , Exemastane and denosumab.  What is the new treatment that you have started?  Good luck with your new treatment. 

    Lee x 

  • Hi, I just wanted to message you as I encountered similar issues with Paclitaxel, didn't have mouth ulcers but neuropathy side effects really tough. It's good the oncologist reduced your Paclitaxel dose. The same in my case but side effects of neuropathy still going on. At the beginning the oncologist prescribed me Gabapentin but I didn't have any improvement so at my last appointment she prescribed Amitriptyline and Dermacool 5% menthol cream. I think you should insist and ask your bc nurse/oncologist to prescribe you something for neuropathy. I almost forgot to mention cold therapy socks.

  • Hi thankyou for messaging me and good to know there’s something for the neuropathy, yes I do glad she’s going to lower my next treatment  because it was brutal .. still got it a bit in my fingers but legs and feet are feeling bit stronger which is good this week we have managed a short walk into the woods which is so near to our house..  it the most strangest feeling, are you still having the Paclitaxel , if not and you’ve finished it did you get the feelings back … thankyou for sharing with me x