Newbie here
Following chemo and right sided Masectomy, 15 RT's I have been recommended to start Kadcyla
I'm HER2 positive
I had a terrible side effect to Chemo & finished it one session early as the surgeon said it was making no difference other than making me feel terrible, causing very low platelets and liver problems and delaying surgery. Since Surgery I am about the finish my 15 treatments of RT
Kadcyla has been recommended 14 sessions x 3 weekly
Reading up on the side effects, I cant decide whether to go ahead with it, my gut feeling is telling me no
Has anyone had any experience of it?
thanks is advance
Daughter had 14 cycles of Kadcyla after her initial 8 chemos, 3 surgeries and 15 sessions of radiotherapy.
It was manageable. It wasn't the walk in the park oncologists will try to have you believe but it wasn't as tough as earlier chemo. Some nausea, but daughter found ways to cope - it didn't lay her as low as EC did. Digestive issues were also managed with meds. Tiredness was cumulative, she was back at work by then but only managing about three days a week.
Biggest problem was peripheral neuropathy. Feet much worse than hands. Gabapentin kept it to a just about bearable level. She did consider stopping after 12 cycles because of the neuropathy but (daughter is medical) had done a lot of research and felt 14 cycles was the optimal number. She finished in February. So much better now - strength returning, much less tired. Neuropathy still there, still on Gabapentin. Very much hoping it will eventually improve and she will be able to come off the drug. But she has no regrets about Kadcyla, is sure that, if recommended for you, it's the best option.
Wishing you the very best of luck with your treatment. You'll get through it. Sending love and strength xxx
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