Had my results today and I’m gutted. Was told initially my lymph nodes looked clear on ultrasound but just told the sentinel lymph node tested positive and they also didn’t get a clear margin. Now g to have another shave of tissue removed and an alnd procedure done. The tumour was 23mm and grade 1. I’m so scared
xxxx
Hi. I also had clear lymph nodes on ultrasound and MRI scan but biopsy showed 1 out of 3 nodes affected. Worrying really how it did not show up on scans but was there, what else could be lurking in the body not shown on scans, guess that’s what we have chemo for.
Please be assured that having axillary lymph node removal is taking any risk away so really best to get rid but I have seen on here people have had radiotherapy in that area instead so that could be an option maybe. I presume you didn’t have a mastectomy?
I know it’s easier said than done but please try not to worry, a grade 1 cancer is very curable/low risk of recurrence.
Hi Woody14
Just had to reply as I feel for you, it’s such a shock when you get unexpected news. The same happened to me, sentinel node unexpectedly positive so ALND. Literally cried and cried for days, had the ALND and 26 nodes removed, no others were positive. Now I’m on the other side, I’m glad I had it done. No problems with swelling in my arm either and I’m nearly three years out. Trust your team - sending big hugs x
Hi no I had a wide excision lumpectomy. It’s really thrown me as I was not expecting to hear it. Thanks for your reply tho - it has made me feel a little better xxx
Awww thank you so much for replying. I feel much more positive now xxx
Ah I see, I know these operations are scary, I felt exactly the same before mastectomy and the axillary lymph nodes removal but you will come out the other side and it’ll soon be a distant memory I promise xx
Do you have any tips for preventing swelling? Do you do regular exercise? I’m so paranoid about getting lymphoedema I’m exercising and stretching every day.
Hi Woody14
I feel gutted for you. You go through all the stress of and discomfort of the operation and then have all the hope that it's been successful and then you have to psych yourself up to do it again.
At least there is no way anything will be lurking in the future.
Keep smiling....like the others say it will be a distant memory soon.
I am a few weeks behind you. I have my lumpectomy tomorrow and sentinel node biopsy etc....I am already worried about margins and it being in the nodes, even though MRI clear.
Xxxx
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