Tamoxifen

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Hi, did anyone here stop tamoxifen? I talked to my consultant and my risk of reoccurrence is pretty low in the effected breast so taking it isn’t really making much difference but he said I have a higher risk of getting it in the unaffected breast so I have to carry on for that. 

i just hate the drug so much, im hungry every moment of the day, I have a double chin and an expanding belly from bloating! I took a 3 week break and felt so much better. I already changed from letrozole which was worse. The breast cancer nurses just say be kind to yourself and you’re still really small but I can’t help that it matters most to me not to gain weight and I can’t seem to control it. 

ive also read about studies in America where people halved the dose - has anyone tried that? 

  • You find yourself in a position nearly everybody has been to,only you can make that choice.Personally i have been on tami for 3.5 years the only time i stopped was when i got covid for 4 weeks ,the other problem i have had is different makes which is annoying and i am on this for 10years. Should i swop tami .You have been there already .It is just down to what our bodies behave like,at the end of the day only you can choose what to do.I chose not to have chemo i hate taking a drug everyday,everyday i look at the tami box and everyday i wish i could just throw it in the bin,but .......life goes on and i swallow the pill i took the gamble with chemo so i will swallow the pill .kind regards

  • I agree but I think if I was making the choice for myself it would be easier. My partner and family want me to take it, I’d take the risk for myself but I dread taking the risk and then having them have to support me through cancer a 2nd time! I like your approach of getting on with it though! 

  • Hi woo1973.  I hated taking tamoxifen so oncologist changed me to letrazole and that was no better.  I took them for five years and then stopped.  I was supposed to be on them for ten years.  I took the gamble and last year was diagnosed with metastatic breast cancer which is incurable.  I still wonder if I had taken them for ten years instead of five, it would of made a difference.  I will never know but I made the choice and now have to live by it.  Good luck with whatever you choose.

  • PS My cancer has spread through the blood, so I dont know if it would have made a difference.