Hi all
I finished chemo two weeks ago and will start Radiotherapy and Tamoxifen on Thursday. After Radiotherapy is finished I’m due to see the Oncologist and all being well I’ll be discharged.
But I’m scared!
As much as I want to get back to normal, I feel ’safe’ having treatment…..no scared of life without HRT, my body physically and mentally miss it so much already - without even starting Tamoxifen.
Im scared the cancer will return, I want to cry, feel overwhelmed- I look in the mirror and don’t recognise the person looking back.
Ive gained a lot of weight during chemo, lost a lot of my hair, lashes and brows and feel like I’ve aged a decade.
I’m constantly tired. I know it’s still early days but will it ever go back to normal?
I ve had a pain in my right breast, the Oncologist thinks its side effects from the chemo but I keep thinking. ‘what if it’s back’? ……….
I don’t have any other scans or anything booked until the annual Mammogram which will be around December time.
Is this normal to feel this way?
I know there’s people far worse off than me Xxxx
Hi Newjourney, my daughter could have written this! She's 10 weeks finished treatment now - two years of chemo, surgeries and radio. But, 10 weeks on, things are slowly improving. She's suddenly motivated to work on shifting the weight and is building up her exercise. Has had her short hair restyled and highlighted. Has also made an appointment for a facial and to discuss what treatment they would suggest to attempt to reduce the dark shadows and 'hooded' eyes - decided to treat herself.
Daughter was so happy to have finished treatment but there's that deep fear now that the 'comfort blanket' of chemo has been taken away.
Yes, she's still scared of every little headache / joint pain / upset stomach ... everything. But, nearly three months on, she's learning to relax and control the worry. You will too, it's very early days.
Very best wishes, you're nearly there! xxx
Ah thank you for replying.
It’s so hard, I should feel pleased but feel so many things, angry too at cancer for what me and my family have gone through, for taking away the last year, but then grateful I’ve had a warning - lots don’t get that.
If I have a pain, how do I know if it’s normal? Nerve pain? Do I leave it or bother the nurses with every twinge…..just feel so many things.
I try and put a brave face on and say I’m fine, I’ve been lucky but hear the voice in my head saying….what if…..
I just want to know it’ll all be ok , wish I had my mum still
My husband, family and friends have all been amazing but just don’t always understand xxx
Bless you! Yes it’s tough after lots of treatment, but you’ll no doubt find this article a help, and yes you will gradually learn to trust your body again.
Hugs xxx
Moomy
I’ll just warn you, the first time I read it I cried, it was so apt!
Hugs xxx
Moomy
If your hospital/ cancer unit is in the right area for the ROSETA trial, run from Leeds but available in around 19 bases in the country, it might be worth asking or finding out as I know they are still recruiting. I’ve completed it and found it helpful. It’s open to ladies who are taking hormone medication.
ROSETA Optimisation Trial | NIHR.ac.uk
Link above to find out more.
hugs xxx
Moomy
Ah thank you, I did have a look and unfortunately my hospital isn’t taking part in the trial which is a shame x
Hi Newjourney. I could have written your post! I finished chemo a while back (four weeks early due to neuropathy so that in itself caused me to worry that I had not finished chemo). I started radio last week and will be embarking on hormone therapy (Letrozole as I have menopaused and they don't give tamoxifen to women who are post menopause). That scares me too as not only have I come off HRT which I felt really helped my mood, but will have any traces of oestrogen taken away further. I have talked about this fear with my oncologist but I have never felt really connected to him.
I had a really good conversation with a nurse in my radiotherapy team though and she is referring me for counselling as I talked openly about my fears for the future and life after cancer. She recommended googling "Future Dreams" and also two courses. One is "Hope" by Macmillan and the other is "Moving Forward' by Breast Cancer Now. I haven't looked myself yet as only got the info on Friday. I'm also going to a support group at a local cancer centre but the first one I went to, everyone complained about the side effects of Letrozole so I came away feeling even more worried!
Hopefully the courses will help us both!
All my best wishes
Dee xx
Hi all, just popping in as I saw the reference to Future Dreams. If it’s the one I’m thinking of, it’s Future Dreams House in Kings Cross, London. It’s a lovely place and does both in person and online stuff. I have done several sessions there as I’m only an hour or so outside of London, and it’s such a welcoming place. Can’t recommend it enough! A friend has done a couple of online sessions which she also found really helpful. Love and hugs, HFxx
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