I'm just off loading?

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Thought I'd just pop in to check on people. How is everyone doing/feeling/etc? 

I've had my 1st chemo last Thursday. Monday pm started a slight sore'ish throat. Tuesday am, woke feeling like I'd been chewing a mouthful of nuts with a side of cheese grater... Figured mouth ulcers so emailed my GP (like you have too these days) at 8am. At 8:30 I had a call "can you get here in 30 minutes?” Flew up there and waited. And waited. 1 hour later I was called in. 

Went in, gave doc ALL my paperwork & explained saying I just want a prescription for mouth ulcers stuff.

I got a letter and a cab to A+E instead. Query sepsis. No fever or any other signs BUT I had just started chemo...

4 hours + and I finally got told " oh your results were back hours ago. You could have gone". I love the NHS but WHAT?!

I got home after 4pm. No breakfast. No caffeine. No meds (I'm insulin dependent diabetic). Luckily I managed to take my anti nausea + steroids a bit late with not much agro.

But I have managed to spend WAY too much on mouthwashes & gargles & gels etc that do sweet nothing. I was doing salt before it started too try and stop it starting, but that went wrong. 

That's the end of my rant anyway but thought I'd just pop in to check on people. 

How is everyone doing/feeling/etc? Please let me know if you have any cures or even just reply if you want to off load. 

Keep well everyone (and that's an order!)

Love & hugs xxx

  • Give your CNS team a call if the soreness / ulcers are not better. Daughter had this pretty much throughout chemo but was prescribed a very good mouthwash from oncologist. As a cancer patient, you don't have to pay for prescriptions.

    Best wishes for successful treatment. xx

  • Thanks Cherry.

    I've a collection of antibacterial and pain killers mouthwashes. I have to use the pain killers one before I use the antibacterial. Why make a "helpful" mouthwash that makes me feel like my mouth is full of VERY sharp gravel made from scotch bonnet peppers, OR HOTTER 

  • If you haven’t already tried it I found aloclair mouth wash the most effective, you can get it from boots. 

  • Loving the positivity in your post, thank you and you will be done and out the other side before you know it.

    I have now done surgery,  chemotherapy and radiotherapy.   Ignoring all of that my biggest gripe has to be the waiting around and delays to appointments.  Sitting there stressing about the treatment and being left waiting,  sometimes for an hour or more with no communication grrr.

    I have read so many books, although can't remember half of them as concentration hasn't been the best.

    I have had delays caused by date on the chemotherapy drugs showing it had expired,  chemotherapy prepared but lost, chemotherapy not ready, chemotherapy hadn't been prescribed,  radiotherapy machine broken and daily radiotherapy delays between 20 and 50 minutes with no explanation except we are really busy today etc. 

    I am very grateful to the NHS but it could be so much better.

    Hope your mouth improves, 5 weeks after chemo and my taste is finally coming back.

    Love and hugs to everyone who has bothered to read this xxx

  • Hi, love the positivity in such a crappy experience.  If it's anything like my experience, even the mildest of mouthwashes tasted like a top of the range vindaloo and was completely unbearable! And as for trying to eat anything with even a hint of spice…..forget it.  Best of luck with the rest of your chemo 

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  • Well. After a chat with my oncology team doctor, lovely lady, makes my daughter look old btw. Where I got mildly told off for not contacting them instead of GP, silly me thinking they'd be too busy! I got prescribed YET ANOTHER mouthwash, lidnocaine... Throat & mouth COMPLETELY NUMB. Thank you Doctor S.D