Currently on 12 weeks of PC. Then I start EC every 2 weeks for a total of 4 sessions.
Today I’m asking how is EC administered, just to give an idea of how long I will be on the unit for?
For info: I have also been cold capping.
Thanks
What session number are you on on PC? How is your hair holding up? I’m one session down and cold capping also. Very anxious about hair loss. I’m having 9 sessions every week then on to 3 sessions of EC every 3 weeks.
Hi, hope you’re coping after your first session. I’m on week 5 although week 3 was delayed due to low white blood cells, but all back to normal the following week. Week 4 I had an allergic reaction to taxol, so that was paused & they carried on with the carbo. Steps were taken this week re: reaction and everything progressed fine.
Before starting I had my hair cut to just above my shoulders (am told less weight the better). I don’t naturally have very thick hair, but I wouldn’t describe it as thin either. Up to date my hair is holding out. Yes there are more strands coming out if I comb it. No obvious thinning & no bald spots.
I now only wash my hair once a week (day after chemo). Don’t place hair on top of head & lather shampoo in hands first and just smooth through (don’t scrub head). Don’t use hot water. I use a spray leave in conditioner & use this a few times a week so hair doesn’t dry out. First week I dried hair with hairdryer (cool setting) but since then I have let it dry naturally. I also don’t tie it back or use any clips as don’t want to cause any extra trauma to hair. Buy a silk pillow case for when sleeping.
There are plenty of women at my unit using the cap that still have a very good head of hair, so I’m hopeful.
Unfortunately for us, I believe EC isn’t quite so forgiving, but I haven’t met anyone yet at that stage to ask/see. If it does mean hair loss for us at least it’s for a shorter time and will start to grow back quicker.
Good luck with your journey
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