Lumpectomy results/oncotype

Hi, my story is similar to yours i was told lump was 15mm on uss but was 25mm when taken out and went from stage 1 to 2  I also has the lymphovascular invasion on my letter and called to ask the breast care nurse about it she said it just means small cancer cells were found in the vessels but that they removed it all and because my lymph nodes were clear it hadn't spread.

I also had the oncotype score done to see about chemo mine came back at 15 and the cut off from chemo discussion was 16 which I am worried that I am not having the option to have the discussion at least it so hard no one wqnt chemo but the more to prevent a recurrence the better xx

I think almost everyone has something that changes following surgery as only then do they “really” know (ie can measure, send for analysis etc etc). Mine also went up by a grade.

The “good” news is that with ER and PR at 8/8 you will have many options rather than less.

Just remember that there is a MDT (multi disciplinary team) who will be reviewing your case and they have combined years of expertise. They wont be guessing but will be using many tools to work out the best combination of treatment just for you.

If you do want to do research then your medical team will be following the NICE guidelines (National Institute for Heath & Care Excellence).  These are the guidelines which all NHS Trusts follow and explain - albeit for medical practitioners - what options and recommendations are based on a patients profile.

But don’t go down the rabbit hole - read when you are in the right mindset and use it to help make your list of questions for when you next speak to your consultant. 

e.g. What options are usually recommended for my size/grade/stage etc?

- do different options come with different outcomes if so what? (Oftentimes the percentages are quite small in difference, they may mention the PREDICT Tool and you could ask about it as it breaks these percentages down).

- can you explain the differences and why you believe your recommendation is best for me?

etc

You’ve just done completed this first step which is great - the MDT is now busy really working out what’s best for you - take a break do a little reading around and focus on the questions which will help you settle your mind when you next have a consultation.

All the best.

www.nice.org.uk/.../breast-cancer

As one of the ladies has already said, your treatment has been discussed with a team of professional physicians who have years of experience, and they will decide to give you the best treatment that gives you the best outcome. Understandably you are anxious; this is the unknown on what awaits you. But once your results come back a treatment plan will be arranged that best suits you with the diagnosis you have. I think you will start to feel less anxious once you know. I wish you all the best with your treatment plan. X