Neuropathy and chemotherapy

Hi Emmie4

I used to get similar pain. Massaging hands and my feet helped a lot. I still get a lot of neuropathy  throughout my body and massage does temporarily relieve me of pain.

1. Thank you. I’ll try that. Do you know if it’s better to keep your self warm or cool

Hi Emmie.  I had this really bad and some nights were just awful, felt like a prisoner in my own body. I eventually went back into hospital after 3 horrendous days of it to get some pregablin nerve tablets. By which time the effects I think had started wearing off. I think strong painkillers and the pregrablin helped though. My next 3 chemo doses were dumbed down after that because it was so horrible and hard to cope. And just to be clear it wasnt just feet and fingers numbing, it was shin splints, leg curdling pains up and down! Best of luck my friend. You are not alone xxxx

Hi. It’s funny you should say that as touching my body where the pain is at the time makes it worse! I have several different tablets to take now which are helping but that you for your reply 

Hi. Thank you for your message. After my final Paclitaxel chemo on Monday I am hoping that this will die down and the next treatment withEC won’t make it all as bad. I am now on various tablets including a week of steroids which are definitely helping. I have also learnt if my feet are tingling to sit and put them up until this passes. This pain has been the worst thing throughout all of this including my operation to remove the cancer. I wouldn’t wish it on anyone. At its worse it was all over my body other than from my knees to my feet and my head and face! All the best to you too x

Chemo is hard, it's tough and you are doing it, well done Emmie!!! One day you will look back and it will all be a distant memory!!! I had the chemo the other way round and the EC was first, no nueropathy but a little more sickness, it was deffo the Pacitaxel that was horrendous - good luck to you XXXX

Thank you for that, I was hoping the EC won’t be as brutal so fingers crossed. To be honest I’ve had no sickness so far but will swap it with the nerve pain any day! hope you are doing ok. Xx

Thanks Emmie.  My chemo finished last April and then it was radiotherapy for 6 weeks which was a walk in the park after chemo.  So in May it will be a year since it all finished.  I am feeling great, I've been to the gym for 6 months now and building strength, my hair is a few inches long and I have been snowboarding again so I know I am getting better.  Keep on pushing through and soon you will hear the spring birds again, best of luck!!! X