Hi everyone
I have been on here since my diagnosis and have to say its been really helpful reading about everybody's experiences and sharing your journeys.
I was diagnosed with intermediate DCIS on 22nd October after a routine mammogram.
I had a lumpectomy and radiotherapy in 2017 and was on Tamoxifen for 5 years
So a bit if a shock that it has reoccurred in the same breast.
I was very anxious about masectomy surgery.
Anyway I had the mastectomy yesterday & I'm amazed to say I feel really well today (early days I know) I haven't needed to take any pain meds at all so far. I am just relieved it is over now.
I had sentinal node biopsy but consultant doesn't think I will need any further treatment.
I opted to have delayed reconstruction.
Hi Zafy
Sorry this is second time around for you but glad everything went ok with your op and you are feeling ok. I'm two and a bit weeks post single m and I was surprised how quickly I was able to get up and about and pottering, albeit taking it easy. I'd had visions of being incapacitated for weeks and only needed paracetamol for a couple of days. I too had DCIS and SLB taken. Had results earlier this week and thankfully no further treatment needed. The main thing for me is tiredness. Or perhaps I'm just getting lazy and getting into the habit of an afternoon nap! Best wishes with your ongoing recovery.
Hi Cushinmad
So glad you're recovering well & great news that no further treatment is needed! Hoping for the same result
Day 2 post op for me now & haven't even needed a paracetamol!
Just want the drain out now and then I can be more active.
Looking in the mirror is hard for me. I'm in mourning for my (small) boobie
I'm mostly feeling a big relief that the surgery is over, I was really dreading it!
I think the thought of it is usually worst than the reality, but maybe I've just been lucky.
Wishing you all the best
They'll be no holding me back once the drain is out!
All the best to you
Keep on healing x
Next Wednesday I find out if a 2nd 3mm ‘thing’ is cancer too. I have a 17mm lobular cancer. Just had 2nd biopsy following an MRI. My boob currently resemble a black forest trifle!
So next Wednesday will be a decision- if it’s cancer I think I will have a mastectomy, flat. Also dreading looking at it. My breast are great for 55! I don’t want it gone. But I can’t face the worry of reoccurrence down the line more, especially with lobular as it’s not always feelable or seeable in a mammogram.
But, with mastectomy I hope to avoid follow on treatment. It’s not in m my lymph everyone agrees, but we will see.
Seems such a long time since initial routine mammogram. But they need to get it right. Waiting and thinking everything through is exhausting.
I think getting my head round the loss such a personal and feminine part of my body is actually impossible, so will have to just face it when it happens, and mourn it then.
Hi Seasonwatcher
Sorry you are going through this.
The waiting for appointments & results makes you really anxious doesn't it?
I've just been told I have a 5 week wait for my follow-up appointment where I will find out if lymph nodes are clear.
I'm trying to come to terms with losing my boob, just got to remember it has (Hopefully) saved my life. Hopefully I'll feel better when I can wear a post surgery bra & a "softie"
I have opted for a reconstruction later on but been told there is a 2 year waiting list.
Thanks for your reply.
means a lot. What a waiting game. If they think the 2nd bit isn’t cancer they may want to check that out with an MRI guided biopsy at Addenbrookes. More waiting. Hated other MRI Keep wondering if it’s all the time growing/spreading. Should I just decide on a mastectomy and call it a day!! What a choice!! Urghh xxx
Hi Seasonwatcher
So if the 2nd bit isn't cancer, do you have the option of a lumpectomy?
Lumpectomy wasn't an option for me as I'd previously had radiotherapy on the breast.
I know it's really hard to make these decisions but only you can decide.
At least if you have the mri, you will know what you are dealing with & maybe help you decide on what treatment to have.
Sending hugs to you x
Hugs back at ya!
Don’t want to be put on the spot for a decision that’s so big, so if it’s cancer with the 2nd bit, I think that will be that. If it’s non conclusive I really don’t know what I’ll do. Rock and hard place this game.
I don’t have tattoos or like them, but been looking into ideas, to divert away from the nothingness of scar. But that’s how the mind jumps ahead eh!
xx
Hi Seasonwatcher
Let me know how you get on today at your appointment.
My thoughts are with you.
xxx
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