Vitamin D

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Hi everyone

I am considering taking vit D, went to the doc who sort of poopooed it but said I can just get it over the counter and more or less left me thinking that wasn't the response I thought I'd get.

I was hoping to get a blood test to determine how much I would need to take according to me needs after having  a lumpectomy.   He said I'd not long had blood tests before surgery so didn't need to again.

Again I was left dumbfounded but left feeling  deflated.  I asked for advice at the chemist and she said I'd need to know how much before buying.

Then I also thought, should I not be able to get it on nhs?  I'm a pensioner.

Anyway I left a message with docs receptionist to ask  again for a blood test.  Instead the message back was buy 25.  25 what?  When I look on line the numbers are in the hundreds or thousands. 

Can anyone please help make it clear for me and what I should do?

Many thznks

  • Most people with breast cancer are vitamin D deficient. Id check with the pharmacist, but 3000 international units of vitamin D3K2 is usually about right. But check your vit D levels first. You need sunlight to convert it to the active usable form in your body.  Look at the charity website canceractive.com - there are some guidelines on there. I buy mine from cytoplan, but there are plenty of other places to find it. As always check with your oncologist. I imagine your surgeon knows very little about vit D and breast cancer

  • FormerMember
    FormerMember

    I checked with oncologist asi started taking Vits w/o checking. I take calcium, magnesium and zinc (1 tablet contains all), Folic acid, and Vit D3. He said all were absolutely fine and I am def more awake than before. In fact I used to go to bed around 9.30 can easily stay up much later and I do think sups have helped. Best wishes xx

  • Hi,

    There is information on the NHS website that you might find helpful, if you have access. I think they meant 25 micrograms (or 1000iu). I bought a recognised brand from a well known online site (cheaper and larger bottle), but my local supermarket also sells them. This dose was advised by my oncologist for chemo, but last winter I took 10 micrograms per day, which I'd seen as the recommended dose.

  • Hi, it's annoying that you’re not getting the clear answers you need. You might give the lovely folks here at Macmillan a call on 0800 808 0000 and ask for some advice, best wishes 

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  • Hi I am prescribed vit d and calcium (Adcal) on the nhs.  I am sure I was prescribed this at the same time as the letrozol to protect my bones.  I also requested a dexa scan as a baseline..I was diagnosed with osteoporosis so now also take alendronic acid tablets.  I also requested my annual health check for a baseline.  My liver didn’t like letrozole at first but it settled down.

  • vit d is not valued enough in the uk, serious. i started my chemo with 50 nl/ml and i took high doses a few times and now i hav 89 nl/ml...i'm very happy with my vit d levels and they reduce side effects of chemo, seriously dont know why the docs in the uk dont take it seriously