Hi,
My mum was told last week that her breast cancer is now metastatic and has spread to her liver and bones following her initial breast cancer diagnosis in October last year when things had seemed quite hopeful to be treatable. She is only 66 and has been very strong and healthy all her life.
Last Friday when the consultants told us, they said they would go down the route of treatment, (fulvestrant I believe) and that they wouldn’t be prescribing it if they didn’t think there was hope for it working. Sadly during this time my mum developed a chest infection and her calcium levels had become very high meaning she has grown very weak in a short space of time, so the first appointment for the new drug was postponed for a few days, but in that time a different consultant has now told us they won’t try treatment and that the option now will be palliative care. We are so confused and distraught by this change of heart after being given some hope just a few days prior. We understand that her cancer is aggressive, but I’m confused as to whether that is the reason she has gone down hill so quickly.
both my mum and my family were feeling so positive that she’d be with us longer and I feel so sad for her now we are being told that they won’t even try. It just feels all so wrong.
Any advice would be very gratefully received, I’m desperate to help her.
Oh gosh, I am so sorry to read your post and I am sure this is an immensely difficult and emotional time. There is a group for secondary breast cancer (here is the Link) as this might help you connect with others going through a similar situation.
You might also want to give the lovely folks here at Macmillan a call. They could answer some of your questions and provide you with more expert support and advice. You can call them on 0800 808 0000.
Finally, whilst it's tempting to Google these things, that van be quite misleading, so this link to the Macmillan resources might help you, Booklet
I do hope your mum's strength recovers soon and that you get some clarity on the way forward. Best wishes s
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