Hi all, I hope its OK to post like this on here. I had a diagnosis end of September for what they initially thought was early breast cancer. I'd had no symptoms/signs/lump etc and then one day noticed a very subtle change in shape. Went straight to GP and she referred me.
The mammogram showed 'something' as did the ultrasound, but all of these showed a very small area. However following an MRI scan the Consultant told me it wasn't the small, early lump they'd thought but a much bigger tumour growing front to back and therefore largely hidden. The biopsy results also back at that point confirmed Invasive ductal/lobular (I didn't realise it could be both!!) and grade 3.
Going from nothing to 'early breast cancer' to this has left me.feeling massively frightened and out of control. I seemed to go from appointment to appointment being told more and more negative news, contradicting what I'd been told at the previous appointment.
I had staging scans of the chest,.abdomen and bones before they would do surgery. Fortunately these came back clear and I was able to have a left sided mastectomy and sentinel lymph node biopsy. I'm now waiting to go back for results to see if iI need lymph clearance and to discuss treatment. I'm so overwhelmed I'm really struggling. I don't know what to expect and am terrified about what they're going to tell me. I know my reaction isn't good or helpful but I can't help it. I'm having the feeling that I can't cope. Now I've also started to experience really bad dizziness and some headaches. All blood tests etc are normal so I'm worried it's spread to my brain.
Has anyone else felt so overwhelmed they think they're going crazy? I'm not normally like this. I like to be the person in control who is there for everyone else but I'm struggling.
think you are having panic attacks tbh, hugs, you have had so much information thrown at you. it sounds like a giant conveyor belt of treatment, appts, more scans an appts. you are trying to comprehend & control and just deal with this all.
waiting is one of the hardest parts of this and we all go through the, omg its spread, i have ache here or there, or in the shower, omg a lump!
i am going to recommend finding some time to do some breathing exercises to try to calm your mind and body.is there a maggies near you? someone you can talk to? or call the macmillan help line to get some talking therapy.i have found sometimes sitting even for 5 mins to just breathe can help calm u down a bit.
it sounds like you are going a million miles a minute, and somehow you need to slow down, and breathe (hugs) because this cancer thing takes away all our control.
Hi there,
It is certainly overwhelming all that information being thrown at you. I myself am in a similar situation. I went to Gp with symptoms and referred immediately. This was mid September. Initially it was a 19mm lump easily removed with straightforward treatment. However since then and following additional biopsies, scans MRI, the cancer is much bigger than initially thought! My surgery has been pushed back 4 times and am still waiting to have it! I go through periods of feeling in control and then totally out of control. When I feel any kind of pain I convince myself the cancer has spread everywhere, even though I’ve been reassured that this is highly unlikely given all the tests done so far. Once I was sure the cancer was in my liver having seen my nails looking yellowish. It turns out it was the turmeric I had rubbed into the chicken I was cooking the night before!
I’m sharing this with you just to let you know you’re not alone in how you’re feeling. We’re all at different points in our journey and I feel like I’m drawing strength from those who are further along, and I have to believe that it will get easier.
The journey has already begun and there is no going back, the best we can do is to start/keep fighting through this horrible horrible situation.
When I can I am walking, meditating, doing activities with my 2 young children. When I’m struggling, I allow myself to have a good cry ….and lean on family for support as well as from forums such as this one
Best wishes
I too was constantly told the best possible outcome only for it to be retracted at every appointment, I don’t know if this is some sort of protocol doctors follow, but I remember feeling like I’d have rather not been given such a hopeful outlook from the beginning. Maybe learning about things slowly is better psychologically but it can also be frustrating. Just gotta go with the flow I guess and not assume the worst but assume the best and only cross a bride if you get there and not beforehand. Sending love and prayers
Hi, I know others have already given helpful advice but I just wanted to send a virtual hug and share that I am in a similar position. Had surgery a few weeks ago and now a long wait for results, likely in December as they are so busy at the moment. The waiting is definitely one of the hardest parts. I have periods of feeling ok and periods of feeling completely overwhelmed! One thing I have found helpful is just to make myself a plan for each day, no matter how small, and to try and take each day at a time. Sometimes it's easier said than done. This has helped me feel a bit more in control. I have also started jotting down my thoughts (no matter how crazy!) as a way of stopping them constantly circling in my brain. Hope you get your results soon. X
Feel your pain it is overwhelming at times and feels as if it all drags on, it’s normal to feel like this I had full blown sobbing snotters and bawling moment yesterday but was the first in ages. I try to be strong as well but had to tell my hubby I was struggling. Talk to someone or even just rant on here as long as you are letting it out.
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