First post- struggling with chemo.

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Hi

It’s my first post but I’ve been reading the posts of others for quite a while.

I was diagnosed with triple negative cancer grade 3 back in July. My treatment plan consists of chemotherapy and then eventually a mastectomy. Plus immunotherapy for a year. It wasn’t in my lymph when tested but they are worried that it is an aggressive cancer. 
I’m finding chemo tough. I never wanted it (I know who does). So find myself very up and down. It doesn’t help that I have quite a big chemo regime which feels impossible to get through. 
My plan is 12 weeks of paclitaxel, every week and every 3 weeks throughout this I have carboplatin and immunotherapy. Once I’ve finished my paclitaxel I’m then having 4 rounds of EC.

I am 6 weeks in to the paclitaxel and have had to have a delay. This is due to low neutrophils. I totally understand that it’s necessary but it just makes it feel that it’s going to drag on and on.

The good news is I saw my oncologist this week and they can no longer feel the lump. So it’s working. 

I’ve also read awful things about EC so am dreading it.

I’m trying to break it down into chunks and get through it. But it’s a struggle.

I’m not sure whether I can make it through all this chemo. 
I just wonder if anyone else feels the same.

  • Hi, so sorry you're feeling like this, but totally understandable.  It's a long, long slog isn't it and can be scary.  Think it does absolutely feel impossible at times but you will definitely get there and you know chemo is working so that is just brilliant.  I've just finished treatment and looking back I can't believe I did it.  That will be you and you'll be so proud of yourself xx best wishes for the rest of it x

  • Thank you for your reply. I just want time to fly so I’m through it all. 

    Well done to you for getting through it. 

  • I completely understand about you wanting the time to fly. A few days into my first chemo I desperately just wanted to go to sleep and only wake up when it was all over. However, you do you learn to manage the passing of time, taking it one day at a time and sometimes one hour at a time. At the end of every day I say to my other half, well that’s another day gone. You do adjust and learn to cope with the new lifestyle it brings. Hang on in there. Xx

  • Hello

    i had 3 EC every three weeks then 9 weekly paclitaxel I found the paclitaxel fine but the EC a bit harder but everyone’s treatment has different effects I took mine every week at a time and to be honest it soon pasted I did do 10 days in hospital with shingles  so it pushed my treatment back by 3 weeks but only one more treatment left to do then a month off then 15 radiotherapy .

    i find walking helps and I have downloaded a calm app ,

  • Thank you for replying. 
    I have found the first 6 weeks have gone really fast but just quite a way to go. I think it’s the delay that hit me. Which I know I needed as I feel a lot better at the moment. 
    Well done for getting through so much.

  • I’ve been ok on the paclitaxel so far. I’m really dreading the EC as all I’ve read it sounds awful!

    Thank you for replying. I will look into the calm app.

    Well done for getting through all that chemo 

  • I had 3 x ec and only suffered nausea and tiredness, a couple of bouts of dizziness but only when I went out for walks but could either be due to the one sickness tablet I was taking or not enough fluids those days. I had this for 1st cycles, the 3rd cycle I was fine but that could be due to having blood transfusion day before. I have now on 2 of 3 docetaxel and had heard how bad people have suffered worse than ec so was dreading it, 1st one no side effects, second one only a bit of nausea the following day.

  • Thank you for replying.

    I know it affects everyone differently but equally I want to prepare myself. Thank you, you have made me feel better about the EC. The thing is I’d only read the scary side effects of people being really rough and sick. 

    As with everything throughout this, I’m going to hope for the best but prepare for the worst.

    Good luck with all your treatment x 

  • Yes, everyone is different, thank u and good luck with your journey. X