Feeling a little abandoned, post surgery and chemo but still on phesgo and letrazole

Hi BexF , well done for getting through all that treatment! Sorry you’re now feeling somewhat abandoned, think that’s a common emotion though after all that you’ve endured. And I think family and friends simply don’t realise how draining it all is, both physically and emotionally. I’m wondering if there’s a Maggie’s centre or similar near you where you might be able to access some support/ meet others in similar situations, if that might help? And there’s an article which you may already have come across which I return to and have found very useful over the years: 

www.workingwithcancer.co.uk/.../After-the-treatment-finishes-then-what.pdf

Sending you love and a big virtual hug, HFxx

Hi I don’t have any answers for you but just wanted to let you know I’m In exactly the same boat as you finished treatment surgery, chemo, radiotherapy at end of July and now on letrazole. Have to wait a time for reconstruction.  Family and friends are so happy treatment is done & talk about a bright future work talks about me coming back. I feel broken so far removed from the person I was with so many side effects  affecting every day. All I hear is give it time just wish there was more help for this part of the journey. Be kind to yourself xx

I'm really sorry that you are feeling bad about that, I finished my chemotherapy treatment a few days ago and my family is already happy and they already want me to start my routine, I barely have the strength to stand for minutes, I have tried to cook and help the house but I get exhausted very easily, I understand you and I send you a big hug.

It’s such a funny thing isn’t it?! We get loads of attention, scans, nursing staff, appointments, etc, etc and then when it’s “all over” feels like a primary school kid suddenly going up to big school!!  I remember phesgo (NOT fondly!) but I got through.  I’m now on letrozole for the next 8 yrs. You still should have contact with Macmillan on their phone number, they are there for at least 3 months after things have ‘finished’ if you need help/advise, I was told. Tell people who think you should be ‘bouncing back by now, that you’ve been mutilated, poisoned and burnt!! That’s what I said, soon shut them up! Haha! It will pass. It’s the biggest deal of your life..take your time to let you mind, body and spirit heal! I wish you well..

Hi BexF. I hope you’re giving yourself a chance first to say well done.. you’ve made it thus far.   I’m not quite where you are yet so I don’t know what it’s like.  I’ve had 12 weekly chemo with phesgo and zometa at intervals.  I just had the surgery this week and await full pathology to see what’s next.  It’s such a tough time.  I wonder whether there’s a group near you, macmillan maybe?, where you can drink tea and talk about where you’re at and how you’re feeling.  I’ve been trying to plan some things to do after the main treatments are over.  And I’ve been writing things down.  That helps me.  Can you plan any treats?  Do you feel up to doing something you’d enjoy that’s not too energetic.