Hi everyone
Apologies for nutty post!
Well I underwent my op for wire led bilateral local excision plus lymph nodes taken for checking ( can’t remember all the terminology)
Operation was wed 3rd May where I’m surprised they didn’t have to scrape me off the ceiling. The following morning a dr came round and said ‘oh both lumps were removed ‘ and she sounded all pleased. So I asked if they’d managed to get the margins. She replied on the right hand side yes, but not on the left. So I cried. Prob as I suffer from anxiety and as the woman next to me snored for the entire night so I had eyes on stalks.
I was so hoping that they’d got everything and really don’t want to go through another lot of surgery So waiting now for a date for appt to discuss way forward 3-4 wks I’ve been told.
Yesterday I had to stop wearing bra top as it’s pushing into the dressings and clear patches which are covering the wounds and have had a nightmare trying to get comfortable.Don’t know if anyone has any suggestions……I did make some heart cushions and kept two for myself and gave rest to ward sister to distribute. I found these do help to relieve the pressure.
Currently wide awake as I decided to go back to my bed tonight as hubby said he was missing me(I’ve been sleeping in my daughters old room) and the dog who does suffer from doggie dementia and is parially sighted has been pacing about and being rather vocal. After getting in and out of bed trying to shine a light to enable her to see where she is in the bedroom I ended up putting basket in my daughters room in which I’m back sleeping. After more pacing about and moaning (the dog not me), I found myself at the top of the stairs trying to coax her downstairs. I just sat there as I can’t lift her after op and hubbys asleep in 2 secs and has to be up at 5.20am and all I wanted to do was sleep and or cry. I don’t do crying but after coming off HRT after 18 years I’m having all the fun of sweats and tears which is soo annoying. I couldn’t stand it any longer so I threw her basket back in with hubby and came back into my daughters room and shut the door. I can still hear her growling and the odd bark and my husband has actually woken and shouted at her. I know I should feel bad but in truth I really don’t as if I don’t look after myself then clearly my hubbys not as he’s in the land of nod. And I think my knight in shining armour has got delayed somewhere
I hope whoever is still awake reading this has a bit of a smile on their face after reading this and thinks ‘omg I’m so glad I don’t have that westie’
Wishing you all a good sleep Lynn xx
Bless you lol! At least you're keeping your sense of humour....do continue to look after yourself. And yes you did make me laugh.....and possibly rethink my longing for a little dog!!!! Good wisheso you xx
Hi Lynn. I don't get on here as much nowadays as I'm a bit further on down the track. I to had bi lateral excision sin September 2021 and consequently feel your pain. You simply don't have a good side to rest on and I do think the added surgery of both breasts being affected makes a difference. Luckily my lymph nodes were removed and clear. Just to shine a light at the end of a bloody dark tunnel you will recover . It took me a year and when I think back to my surgery, the pain, bladder infections, and just sheer terror of it all it seems all a bad dream. This forum was and always will be in my opinion a god end. Non-judgemental and informative. Keep going, honey
.We all have you. x
Hi ChocolateChip
thank you for your reply. My soh disappeared yest after having a meltdown (anxiety and ibs!!)Had dressings removed and have another appt for mon as one lymph node wound still needs to heal. Got home and was shattered and sat and cried. Honestly I feel like a water feature at the moment
Hope you’re doing ok
Lynn xx
Hi PenelopeJ57
Thanks for your reply. I don’t think I have notifications on as I missed the replies. Mabad!!
It’s good to speak to someone who’s had both sides done. Everyone I’ve spoken to has just had the one. When I say ‘just the one’ I don’t mean that to sound flippant as everyone who is on their journey with breast cancer is going through tough times. It’s just as you say not knowing how to get comfortable with 4 wounds.
Anyway I’m grateful for the cushions and they have become my friends
It’s good to be part of this community and able to have a vent when things are just a bit too much.
Good to hear you are a year on now. Good luck for the future
Lynn xx
You're coping with an awful lot Lynn and it is perfectly normal to have a meltdown occasionally, I think we need to! There is someone on here who as a catch phrase something like 'don't be afraid to cry it heals sorrowful thoughts'. In my view by crying you are helping the healing g process. Have enough rest and at the moment do whatever is best for you! We're all with you . Hugs Janet
Hi
Thank you for your kind words I will try and take your advice along with my friends and family.
hugs back Lynn x
OMG I can so relate to you. I have recently had a DCIS removed and heard last week I need t mastectomy due to more pre-cancerous cells being found. I was also up Monday night with my 13-year-old dog who has a heart condition and we think dementia. also up Monday night with my 13-year-old dog who has a heart condition and we think it’s like dementia. He was panting and not settling and wanting to go out in the garden at three in the morning (and out down the road for a walk) I’ve made him a lifting device like a handbag, so I can carry him like a handbag, so I can lift him with my one good arm as he doesn’t walk a lot either and he’s losing the use of his back legs! On top of this, I’ve also just come off HRT and I’m getting night sweats and extremely emotional; crying at everything! So sorry you are going through so much too.
Hi Lynn hope you are doing OK, and you are feeling a bit better...it takes time. Been thinking about you. Especially since I got a little rescue dog.... Janet x
Hi JenColl
I wondered how you were getting on? How’s your lil dog? I’ve started mine on CBD oil as a friend of mine has it for his dog who’s blind deaf and has dementia. And my dog is sleeping through till 5.30 ish so very helpful.
The menopause symptoms are a pain though. Hot flushes. Night sweats and v low mood. Crying for no reason has eased a bit but stil awake at night unable to sleep for more than a couple of hours anxiety worse than normal. I’m taking Bach flower remedies and spoke to my bcn re sage leaf supplements but she’s told me that they are photoestrogen and as my cancer is hormone dependent I should steer clear!
Ive got second lot of surgery at beg July and then on to radiotherapy and tab.
Take care Lynn x
Hi Janet
Thanks for your message. Well the mood is definitely better no more tears. Just the hot sweats and VA to deal with. I decided to push the pouffe back with my foot on sat and twisted my right knee and then proceeded to do same with left except didn’t twist knee. Repotted a plant and also housework so both knees are painful and I’m currently icing them. Seems get one thing sorted and another takes it’s place
Had second surgery booked for 5th July and the admissions lady called me 3 times in one day to change it back and forth. I’ve now got 12th July!!
My dogs on CBD oil at night which is great. She’s had a bit of a spate of waking around 2ish but think somethings waking her rather than her just waking of her own accord and she settled back down
How are you doing? And your lil dog?
Lynn xx
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