Struggling

  • 2 replies
  • 273 subscribers
  • 555 views

I am sorry to be posting but I have now had enough! 2 operations and facing chemo and radiotherapy based on a clumsy letter from another hospital telling me I will have a blood test then return home for a telephone call. No advice of contact or why blood tests are needed and my axillary node clearance wound still hasn't healed.  I really feel like packing a bag and running. I have been fine so far but this is too much

  • So, so sorry you’re feeling this bad. No help from your BCN? If not then maybe it’s time to ask your GP practice for a nurse to see you about the wound.

    Sometimes consultant secretaries can help sort out a mess or misunderstanding. They can be worth their weight in gold if you get a good one. 

    please don’t try to persevere in silence, phone the Mac line for advice too, 0808 808 0000. 

    hugs xxx

    Moomy

  • Thank you for your kindness Moomy. My first centre where I had all my surgery has been great.  I have now been referred to another centre for chemo and radiotherapy. They sent a standard letter but omitted any contact details and advised because of COVID I would get a telephone call with a r random doctor not listed on their website when I was expecting a discussion on why chemo is back on the agenda.I have been really positive so far for friends and family. I have just had enough now.Clearly not important enough for someone to take any care whatsoever