I haven’t felt like I do st moment during my treatment. I’m now on the heceptin injection and have asked for my other breast to removed but I’m now not sleeping and feeling really low to the point of giving up as I’m scared of the cancer returning but also hating how I’m looking (not balanced). This didn’t bother me first after surgery but it’s now getting worse abd sometimes I just don’t want to continue.
I have tried telling the cancer nurses how I’m feeling and my own gp but just feel like I’m being stupid.
What you are going through is without doubt soul destroying and feels like your world is crashing down. there are so many of us who have gone through this (and worse). I’m sorry you haven’t been offered any kind of counselling/chat with someone who can help you. (Surgery to remove the other breast is not an option if you’re clear of tumour. I know this as I asked prior to my surgery). If possible see if you can find a cancer club near you/or thereabouts…it really has helped me to be in company with others who have different cancers and talking to those who are years past having treatment and who have happily survived! It’s a state of mind which I truly know is hard to shake but as time passes we become stronger and more able to cope with the grind of treatment and appointments. I really do wish you well and hope you find peace in your mind xxx
Thank you. I have been told I can have the other breast removed, I just need to see the psychologist to make sure I really want it but obviously the waiting list is long (I expected that) but it’s the time whilst waiting, I feel like there’s no support and you aren’t signposted to who to talk to if that makes sense xx
Really surprised no counselling is offered particularly as this is a life changing op..is the only route a private one? That’s ridiculous! You could try Macmillan Navigators, speak to them to see if they can offer any help xxx
Hi there,
I’m sorry you are feeling this way - it does seem like a really hard place, but also an understandable one for now. You are feeling traumatised and it’s affecting your sleep. Sleep deprivation and night time ruminating is just the worst. I notice you are having your treatment in Leeds - I assume at the Bexley? I am too! Have you been to the Maggies Centre there. It’s a lovely place - lots of support on offer there including even when you just drop in. They also have qualified counsellors and various groups etc. You can also just go in for a coffee and sit in the lovely surroundings.
I will be there quite a lot over the next 9 weeks as starting a weekly Paclitaxel regime on 25th. Happy to meet you there for a coffee if you would like one day - (don’t know if you live in Leeds but i do) just private message me.
You can do this - it sounds like you haven’t been made aware of this place and I’m really surprised. It’s right next to the multi story car park - open Monday to Friday 9-5. Honesty I can’t sing it’s praises enough.
Jan x
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