Moving on

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Hi everyone, I finished my treatment (for oestrogen+ BC) just over a year ago and my first mammogram has come back clear so all good news but I was just wondering how others are coping post treatment? I am back working now and my life has resumed back to 'normal' just with a few added issues from surgery ie. Lymphoedema in my arm and chest  and pain in the surgery site. I'm writing this post though because I just can't seem to get a grip on what I've been through. It all just still plays on my mind morning and night. I had the embarrassment of going for my smear yesterday and a very helpful nurse telling me all about the tests and why it was done and as soon as she mentioned the word cancer I started crying - even though I know they aren't linked cancers. Just wish I could move on and put this behind me. Does anyone else feel like this? Is it normal? I have a few other health issues so I'm used to just getting on with things and not letting my ailments get to me. X

  • Hi, I tried to reply and it failed to give me a place to type! So am trying again. 

    Yes this is all so very normal, you’ve been (and are still going) through a life-changing diagnosis and it’s necessary treatment. In one way you’ve had a sort of bereavement. I guess as your bc was oestrogen positive you’re still having hormone meds? They too can have an effect on your emotions.

    Is there a system of getting counselling from your bc unit, as I wonder whether that would help you? I also believe there are ‘moving on’ courses available in some parts of the country. It might be well worth you getting in touch with your BCN to ask about these possibilities. 

    Understanding hugs xxx

    Moomy

  • Hi, I am the same, a year since being diagnosed & just had 1st clear mamagram on remaining breast but still struggling mentally

    I am seeing great psychologist which helps & she tells the way I am feeling is normal & to be expected. She tells me I am being hard on my self when I say I need to get a grip

    It's difficult as I think people believe you are all sorted & OK now but it's not the case. Not helped by the fact that I am on drugs for a number of years now & have to go to hospital a couple of times a month for review

    Try not to beat yourself up for the way you feel, it takes time! 

    Best wishes x 

  • Thank you for your message. Yeah I am on tamoxifen so that comes with its added side effects. I think you are right and I need to have a chat with someone. Take care. x

  • Thanks Kitty, it's good to hear that others experience the same thing. Think I will arrange to have a chat with someone. X

  • I am just a bit further on from you. I had my first annual mammogram in July and I’m also struggling. I went back to work in the summer as a nurse in the department where I was diagnosed and had my treatment. I have had to hand my notice in as there’s no way I can move on. I bump into my surgeon in the car park on the way in and then walk into my oncologist at lunch time. Everyone’s really supportive but I feel like I can’t get away from it.

    I have no idea what to do now or if I’ve made the right decision.

  • Oh  , that’s so difficult! But you’re an experienced nurse so surely your hospital could redeploy you in another field/job? Might it be worth you talking to HR? 

    Sending hugs xxx

    Moomy

  • Sorry to hear that gilliebean - I can't imagine working in the same place as treatment must have been so difficult - I find it difficult enough going back to the doctors surgery/hospital now and again so going everyday must have been very tough. Sending a hug. X

  • I’m two years on, two clear mammogram and it does get a bit easier..I promise!

    im not going to lie, I still worry about every ache and pain, most recently thinking I had developed ovarian cancer as I was getting tummy pain, particularly at night. My GP was great.. ordered tests and said it was more likely menopause but wanted to put my mind at rest, all results back and clear, which deep down I knew they would be! 

    The menopause because of the tamoxifen also had a lot to answer for. I feel anxious and my memory is completely shot! so depending what stage you are at this may be affecting you too. 

    So remember what ever you are feeling is completely normal, there is no rule book on how to get through this. Give yourself time and ask for support if you want it. 

  • Thank you cyprusfav for your supportive message. Have taken some steps today to enquire about speaking to someone. Take care and glad your tests came back clear.