Malignant phyllodes tumour

Hi EwyBear 

I'm just replying to your post to get it back to page 1. I'm hoping someone is around who can help you now as it's a fairly unusual diagnosis.  If not, it might be worth asking the nurse  if there's any more information that Macmillan can help you with.

Kindest Wishes, Lesley

Hi - Unfortunately,  I've only just seen your post, so I hope my message finds you in reasonable spirits.

I was treated for a malignant tumour in March last year, had a lumpectomy in April, whereby the recommended margins could not be achieved, hence I was referred leading sarcoma centre/cancer hospital and underwent an extended radical mastectomy in August.  I have recovered very well physically and have not required adjuvant radiotherapy.  My next 3 monthly review at the specialist sarcoma clinic will be my last and I will be passed to a nurse led clinic for those reviews that follow, unless of course something shows up.  

It is a lot to deal with, like any other malignant ailment, but Macmillan are a wonderful source plain, simple advice and support. 

I hope your journey has the positive outcome you no doubt wish for, and, if there is anything else, this forum is a good place to land.

Take care and I wish you well.  xx

Thank you for your reply, so happy to hear you’ve recovered well. I have since had a mastectomy and having proton beam therapy in the next few weeks!