Body aches

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Hello all 

I've now finished 6 lots of chemo it's not been easy to say the least but I rang the bell and the tumour has shrunk  just waiting for surgery has anyone out there suffered  aching limbs and still quite fatigued anyone had these problems I'm just hoping they will fade as it's only 3 weeks after chemo I'm eating a good diet and trying to do some exercise but it wacks me out any tips would be great X

  • It's very early days. I takes a good year to fully recover from chemo and even then, some people have lasting side effects like peripheral neuropathy.

    Chemo is also cumulative so you could recover OK within the three weeks to the next cycle after the first round but after 6, your body has taken a battering, I was surprised at how lingering the effects of final chemo went on for, and after those immediate side effects disappeared, it really did take a very long time to feel OK, though I was also put into a medical menopause with zoladex and take exemestane on top, so fatigue and pacing myself is the new me.

    I had surgery 4 weeks after chemo and was worried my bloods wouldn't be good enough I still felt so rough. When I saw my oncologist 5 months after chemo ended to ask about the water retention I still had, he said it was very early days for chemo recovery.

    Be kind to yourself and try and keep most of your energy for the things that make you happy.

  • Aww bless you thanks for replying I'm just impatient I suppose I want to get back to normal and loose some weight I've put on nearly a stone and my oncologist said that was normal I was surprised as I'd hardly eaten anything he said it was steroids and docetaxel he said gently exercise and diet .The night sweats are awful but I'm nearly 63 and  never been through the change as I was taking hrt which made feel amazing I had almost waist length thick blonde hair sadly that's all gone but I do have some fun wigs especially the braided ones they are so easy to pop on in a Hurry  I have to think I'm lucky I caught this early at stage 2 not looking forward to the hormone therapy letrozole or tomoxaphine we will see how it goes I'm having a massage Thursday hopefully that will free my pain up a bit  take care hope you start feeling better soon too X

  • Hi Fiona

    As the others have said, it takes a wee while to fully get over what chemo does to the rest of you, beyond sorting out your gremlin. I am just over two years since diagnosis and had my Chemo up front before surgery. A lot of other treatments followed-on. Now just having exemestane tabs. After about 6months on letrozole I switched to this and I have to say I am doing OK on it, all things considered. 

    I found walking almost every day helped me. If I was achey in the house 5 or 6 miles of walking somehow eased everything. I felt worse aches on the days I didn't get out. I  was at your stage during lockdown and I have to thank niece and girl friends who came around for me and walked with me every day. The exercise is good for mind and body and it was very good to have my trustys to talk everything.over with. I am a great believer that a problem shared is a problem halved and also that anxieties are better out in the open, than internalised. This worked for me. I know we are all individuals and so this might not do it for everyone, however it helped me so much I thought I should share. Give yourself time and gradually you will improve. Wishing you all the best.x

  • Aww thank you so much for sharing it has really helped I will endever to get out each day and do those walks I live near the sea so that's a plus point and I'm sure my doggies will appreciate it too take care and thanks for the info X