tamoxifen side effects or something else - leg pain

Hi, sorry to hear you're struggling with cramps. I noticed you've not had any replies yet, the site is busy and you've dropped down the pages,  it my reply will pop you back to the top again and hopefully someone with similar experience will be along soon. Best wishes 

Hello,

I too had TNBC in 2015. Unfortunately I also had nerve damage from the Taxotere. This means I periodically get spells of severe cramp especially at night. I see a neurologist and he altered my vitamin replacements to help correct the cramp. Bloods showed I was lower on zinc and vit D than I should have been. It may have been a coincidence but the cramps have definitely got fewer.

Perhaps you could mention this to your GP? I have no objection to you quoting my situation.

Hope it is sorted soon. Numbness and cramps, especially if they wake you at night, can feel very debilitating. 

Take care. Karen

Hey 

Thank you for you response it’s appreciated and sorry you had to deal with nerve damage it is very frustrating lol ! i’ve spoke to my gp and have an app I suggested maybe tamoxifen but they didn’t want change medication quite yet. But think you’re right it’s likely the long term effects of treatment - i shall mention this to them . thank you