I was diagnosed with a local recurrence of TNBC in December 2031, nearly 10 years after my original diagnosis. I have had two surgeries, 6 rounds of chemo (carboplatin and docetaxel) and 15 doses of radiotherapy. The RT finished on 20th September.
I am now feeling super creaky and achy. Until I get moving and loosen up a bit, I move like I'm 110, but I'm only 44. The chemo seems to have pushed me into early menopause (my periods were back within 3 months with my original chemo in 2012/2013, but over 6 months and still no sign this time). Has anyone else had this. I'm so fed up of aching and not being able to do as much as I was. Over the summer I'd taken up running to try and get fit, to help my recovery. Initially I was the normal amount of achy you'd expect after a run, but now I'm having to force myself to even do a walk. I take vitamin D and calcium, and I tried adding glucosamine, but that made no difference.
On the side of my cancer, my shoulder had got stiffer (after having got back to normal after RT), and I get pain going down my upper arm bone when lifting my arm to the side.
I also think I cracked a rib the other day after reaching awkwardly to reach behind a big drawer in the kitchen - felt a pop and has been sore since.
I feel rather broken. Has anyone else had similar? I am seeing a breast consultant on Thursday to discuss the arm/shoulder pain primarily, but will be mentioning the other stuff too. Obviously my mind goes straight to the worst about what it could be!
Thanks
I'm the same. 47, finished treatment in September. Everything going to plan so far but this past week, every bone in my body is sore. Right to my fingers. I can barely move in the morning. Once I move about it gets easier but if I rest for more than 10 mins I stiffen up again. Feel like an old lady. I find having a bath helps me. Hope this helps x
Sounds exactly like me. It really sucks doesn't it!! I'm going to see one of the breast doctors tomorrow and will be discussing it with them. It is really impacting on quality of life at the moment, and making it harder to do the exercise that I want to do as a form of ongoing treatment (seeing as TNBC has no specific ongoing treatment options). Out of interest, what chemo drugs did you have?
I found the same after chemo, though some of the aches eased with time. I get the same neuromuscular ache in my right arm and shoulder which is annoying. I only know that because I had investigations, that in retrospect werent necessary, but my mind went to all sorts of places regarding why my arm hurt. I am also in my 40s and creaky from early menopause. Like you, trying to exercise as much as I can, eating oily fish, taking vit D, CBD and loratidine. And avoiding sugar and too much very fatty food as I find that makes my joints flare up too. It really is trial and error to find out what aggravates and what helps. This cold damp weather doesn't help though! Really hope your aches settle with time and its just because your body has had such a sudden menopause and needs to adapt to the new hormone levels.
Thank you for replying. I saw one of the breast surgeons the other day and they aren't concerned, but are requesting a bone scan to put my mind at rest.
Today I have suddenly started a period, after 9 months of not having one...so would seem that I haven't been fully pushed into menopause after all. Guess I'll have to see what happens with that over the next few months, and see if my aching improves. Today I am still creaky and achy in my joints but have period pain added into the mix!!
It's reassuring to hear that you have had similar arm/shoulder pain that has turned out not the be anything nasty. It is so hard to know what to get tested and what not, isn't it!! I'll try loratadine (i used that during chemo to help with bone pain). I don't think I can use CBD with the antidepressants I'm on, but will check.
Hi PG78 , just saw this conversation and thought I’d pop in. I don’t eat fish either but have a daily 20-25g portion of milled flaxseed in my porridge or overnight oats, to provide omega 3. There’s some debate about whether it is the right sort of omega 3 but it must be better than nothing. A dietitian whose group session I went to at Future Dreams in King’s Cross (worth a Google), said that the flaxseed needs to be milled to get the nutritional benefits. For my aches and creaks from Anastrozole, exercise seems to be the most helpful thing but the seeds contribute too I’m sure. And they’re great for gut health as you probably know already. Love and hugs, HFxx
Thank you. I actually already have milled flaxseed on my oats and fruit each morning, so I will try upping the amount a bit. I have actually been a bit less creaky this week which has been nice :)
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