Supplements

  • 6 replies
  • 273 subscribers
  • 544 views

Has anyone taken these supplements. I have low energy and generally feel unwell. I had surgery in March and radiotherphy in June. I am on tamoxifen and citalopram. I did a check online where I bought them, just want to make sure they are ok to take. 
I returned to work full time in august. When I come home I’m exhausted.  My work isn’t physically demanding. 

  • FormerMember
    FormerMember

    Check with macmillan or your nursing staff. I had to ask if ok to take Vit D and it was suggested to wait till chemo finished.

  • Best to check with your oncologist, via the oncology nurse. Some drugs do not mix well with certain supplements, and while with some drugs it's a blanket "No," with some it's a question of quantities and combination, so only the clinician and the oncology pharmacist who know your exact history and prescription can give a definite answer. If you are unable to get hold of them, then as Tavares suggested, talk to Macmillan, who would likely know the general guidelines for each drug.

  • Hi  , sorry to hear you have ongoing low energy and generally feeling unwell. I’m on Anastrozole rather than tamoxifen but have similar issues, due I think to the low oestrogen levels (hopefully) resulting from the medication. I find the ongoing fatigue to be the biggest problem, but am no longer struggling with work as I was fortunate to be able to retire earlier than planned. But I know that’s not an option or desirable for most folk here. Exercise is my salvation, mainly walking, but again I can indulge freely as I’m not working. Big hugs to you for coping with work, and even if it’s not physically demanding, I found the brain fog that often accompanies hormone therapy made concentrating at work as big a struggle as the physical demands (I was a special needs teacher). 
    Re supplements - I’d echo the comments above re seeking guidance. I used to take various supplements especially to deal with menopausal symptoms but I’m wary of them now, as although I kind of hate the Anastrozole, I do want it to do its job and hopefully keep the beast at bay. I now only take calcium and vitamin D, as recommended by my GP, as I have osteopenia, to counteract the bone thinning effects of my drug. But that’s not a problem with tamoxifen. What I did find really helpful was ear acupuncture which I had at the Maggie’s centre at Addenbrookes. It was aimed at the hot flushes but it seemed to help ‘all round’ as I certainly felt less anxious after several sessions. That was pre lockdown so I might see if I can have a ‘top up’ course as I think the benefits do wear off. 
    Have you looked on the Penny Brohn website? I find a lot of their info really useful. 
    Good luck with it all and I hope you can get some definite advice soon. Love and hugs, HFxx 

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Hi again, meant to add these screenshots re red clover. I can’t vouch for the sources and obviously some organisations are more critical of supplements than others, but worth a read at least. Xxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi