Lymphoedema

Hi, I’ve got it in my right side (chest wall, armpit, flank). Occasionally I feel it creeping into the upper arm. For me, the lymphodoema exercises are crucial. Touch wood, I can control it pretty much wit( the exercises, and a couple of days of increasing the number of times I do them, has so far dispersed it for me. I started off with a compression band, and this did give relief quickly. The thing is that sometimes you can think it’s almost gone away, and then hey presto it’s back again. For me there is no rhyme or reason to it, and I step up the exercises again. You should get a leaflet about these. It doesn’t stop me from doing anything now. 

Thank you I’m just waiting on compression band have started doing the exercises and massage do you wear the compression band all the time?

At first I did. But not anymore. The exercises are crucial for me. If I don’t do them, it comes back

I should add that I was given the compression garment at the end of January 2022, and I haven’t been wearing it for about 5 months now. 

Aw thank you I’ve been looking forward to going back to work and then bam this  but if I can manage it and live fairly normally that will be great 

Do you do the massage as well ?

At first, but I didn’t keep that bit up. That might not be a good thing though

Thanks so much for the info I really appreciate it x

I to get it in chest wall and armpit but i am using 6" paint roller  for 5 minutes which some how works for me and seems to push fluid away kind regards

Thanks the nurse gave me one I’ll give it a go