Scared of recurrence

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I’ve just had a lumpectomy and full axilla node clearance for triple negative breast cancer a couple of weeks ago and I had my check up appointment with the surgeon last week. He said there was no tumour there when he did the surgery and out of the 14 lymph nodes he removed only 2 has micro traces of cancer. It’s great news and such a relief and I am so grateful to have such a brilliant outcome but I am so scared of it all happening again. I know I shouldn’t think it but when you have no control over it and you can’t see it you’ve no idea what’s happening inside. I’m scared to go back in 6 month time for a scan to find it has returned. Everyone tells me that I have no reason to think that way but I can’t help it.

Does anyone else feel like this?

Sarcoma Sux over 2 years ago

I too have anxiety, my blood pressure elevates etc every time I return to the Sarcoma clinic for yet another scan. Your feelings are quite normal. Obviously, "everyone" hasn't walked in your shoes, I have. I'm in Northern California and drive 6.5hrs to Santa Monica and it is the longest drive of my life each and everyn time, It allows me to pray a lot!

T00t5weet over 2 years ago in reply to Sarcoma Sux

Ah thank you for your reply and I’m sorry you feel like that too. It is an awful feeling. I have lots of people around me (I hope you have too), they are all great and have been with me every step of the way but I feel so lonely as no one really understands how I feel. I’m only almost 3 weeks post surgery and I have radiotherapy after Christmas so I’m hoping the feelings and anxiety will ease as time goes on.

Take care.

Kitty1 over 2 years ago

Hi, this is my big worry as I've been told that I an at high risk of reacurrance. I am taking abemaciclib & hope it helps to stop that happening.

I know how you feel, it's a tough one isn't it!

Good luck with the rest of your treatment

Best wishes x

T00t5weet over 2 years ago in reply to Kitty1

Yes it’s a constant worry. I’m not sure if there are many, if any medications I can take after radiotherapy to help prevent it returning as I was triple negative. I feel like I should be happy things have gone so well and I am, just that thought is always in the back of my head.

Thank you and good luck with the rest of your treatment too.

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