Hi - NEED SOME ADVICE
DIAGNOSIS - ILC - TUMOUR 75mm - 3 positive nodes and 4th node had changes, cancer was ER+ HERS2 -
recently had a SMX with clear margins, DIEP and node clearance - still recovering but going as well as can be expected.
Post op was told that as the tumour was large and 3+ nodes were positive - no oncotype required - chemo is necessary, which I accepted ( after a few meltdowns off course ) and was preparing myself for it.
However I insisted for the oncotype test to be conducted - just for my own information ( paid for the test )
Results have just come back with an oncotype score of 19 and I am post menopausal - so chemo would not give me any benefit as per the guidelines.
Oncologist was very excited and happy for me - and said I no longer require chemo as lobular cancer doesn’t generally respond well to chemo and I have a low oncotype score - so just 15 radiation sessions and hormone treatment is the new plan.
I am happy yet confused - if there was a chance I could avoid chemo why were they so insistent that we don’t have an oncotype - and go straight for chemo -
is this the best plan of action ? Has anyone else experienced this kind of decision turnaround ?
