Apologies for the long post but I’m struggling this morning.
I had a wide local excision and sentinel lymph node biopsy in April this year and had a grade 2 ER+ breast cancer. I’ve completed 5 days of radiotherapy as well. Prior to my op I was started on letrozole so I’ve been taking it since March. I’ve had such bad joint pain since then but have been persevering.
I was advised by my oncologist to have a baseline Dexa scan which for some reason I’ve been so scared about. She reassured me and told me it’s not a cancer scan but I’m just so worried about having more scans.
The appointment came through for 2 weeks time and I really don’t want to go, I know it sounds silly but I’m scared they’ll find something else. I only have my usual joint pain and a v sore hip at times, but I’ve had the same hip pain for years.
This probably sounds irrational and I can’t seem to explain it properly but I found my biopsies, guided mammograms and MRI scan so difficult and I am scared of more scans. I’ve been really trying to just move on but this has stopped me again. I hope all this makes sense.
I totally understand your apprehension about having another scan. I had exactly same op as you last Thursday and was fed up of all the appointments and procedures pre-op. I have had a couple of Dexa scans prior to my cancer diagnosis because I have osteoporosis. I think they are just checking on your bone density to see if that may be causing your joint pain.If your bones are thinning you do need to know to avoid any future fractures. The Dexa scan takes about thirty minutes and I didn’t find it uncomfortable, you just have to stay very still. I know you are worried in case they find anything else but if it was me I would want to know but it is such a personal thing as to how you feel. I will have another Dexa in two years and I want to know what state these old bones are in. I hope you find the courage to go ahead with it but it just seems once we have started the cancer route it is an endless series of tests and scans. Keep strong and keep us posted as to how you get on.
evajean xx
hi, I was asked to have one simply to measure my current density in my bones so they know if the tablets they give you , in my case anastrozle, is causing any thinning as this can be a side effect. it was not to look for cancer at all. I think they just re scan periodically just to check if tablets are doing thier thing or if need to change them. Like evajean I have a fracture in spine so it's just a case of tracking it. my DEXA scan was over and done with in 10 mins. apparently I just pick up the results from my gp surgery myself which I will do today! not sure what I'm supposed to do with them! your just feeling overwhemed right now, they are just for keeping an eye on how youvare doing. I had lumpectomy and full node clearence back in Jan. its a long ol journey but we really must do what they advise or they can't treat us properly. well done for doing it all perfectly so far xx
I’m due my next, it really isn’t anything to worry about, Sapphires comment about being photocopied is aptly funny, that really is what it’s like!
in my case I asked for the first one as I had lost height. I was osteopenia, the following one showed mild osteoporosis and was a concern as I’d just started Letrozole. Because of this and my considered low risk of recurrence I was swapped into Tamoxifen for the last 2 years of hormone treatment. It will be interesting to have these last 2 scans compared.
go for it, in my opinion!
hugs xxx
Moomy
Hi Florida sunshine, I’d echo previous comments. Good to have the dexa scan to monitor bone density, and it’s probably the least scary scan/ X-ray as the radiologist doesn’t even have to leave the room. Very much like a photocopier, as someone said! Apparently it’s also a very low dose of radiation, hence why the operator can stay in the room. And very quick. Mine showed mild osteopenia so as I’m on Anastrozole, which is similar to letrozole, I take calcium and vitamin D supplements daily to help with bone health.
Agree that it’s another thing to get done, and you must be sick of it all, but it’s definitely good to have that baseline. Love and hugs, HFxx
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