Permanent hair loss

Its called cancer hair care. Its online if you google it - let me see if I can post a link- I am really not very IT literate but I will have a go!

so its cancerhaircare.co.uk I rang them when my cold cap wasnt applied properly despite my pleas and attempts to persuade them to get a good fit.....and then I lost hair over the crown to such an extent as a result of this. They called me back and advised me and I am still v grateful to them for their support.

Thanks zephyr, I’ll have a look.

had 6 rounds of taxotere and i was told by my oncologist that my thick long hair would grow back.....that was a lie.  it grew back thin and bald spots all over.  yes im glad to be alive but I would have appreciated being told the truth so I could have been mentally prepared for it.....because i was so not mentally prepared for it

So sorry  I hear you!!I’ve been fine until now but it’s starting to affect me mentally too, more so that I’ve been to a dermatologist and she didn’t sound hopeful. She even told me that now I was under her care I was allowed 4 wig prescriptions per year. That’s optimism for you!! I’m 3 months in using minoxidil foam and there is no change so I’m guessing that’s the way it will stay!

If you go for a wig, aim to go somewhere really great like Raoul's in London. A human hair wig lasts so much longer than a synthetic one. They cost more, but last and they can really make you feel yourself again with the right advice and right wig. I know its not ideal to be a forever wig wearer, but there are some great places for advice and decent wigs and you may just enjoy switching up your look week by week like the celebrity judges on BGT for example!

Hi zephyr as I’m in Scotland and have been referred to a dermatologist I get 4 wigs free each year (it was only 1 when my BC nurse was issuing prescriptions) so although not the ideal outcome I’m looking forward to having some fun with them…maybe go wild with the colour or something!! There are a few good places in Glasgow so I’m going to make an appointment. I’ve been wearing a wig for just over a year now but the style makes me feel old so going to try a new trendier place for these ones. Fingers crossed. And thanks for your enthusiasm, cheered me up no end!!

Looking forward to that celebrity flair in your new look!

Hi

I also had Docetaxel chemotherapy, my treatment ended 30th June 2022. I was concerned pretty early on that my hair wasn’t growing back. I went to google and searched hair loss and Docetaxel and when I saw article after article about Docetaxel and hair loss I felt like I had been hit by a train. I learned that I had PCIA(persistent chemotherapy induced alopecia). Persistent should read permanent because my hair isn’t ever coming back, it’s forever. I was told that there was a 3% chance of permanent hair loss which I thought was pretty good odds. I have since found a research study done in my own hospital, it’s there for anyone to see showing that post menopausal women have a 37.8% chance of PCIA. Why haven’t the oncologists amended treatment dependant on age? I have no idea but I fully intend to find out. Cancer should have a beginning a middle and an end. With PCIA there is no end. I’m devastated. If anyone would like to reply to me I would love to talk x

Me too